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cerebral plasy

cerebral plasy
Global Global
Administrator:
libbylincoln

On Minti Since: October 6th

Members: 5
Visits: 374

cerebral plasy


i would like to meet familys who have children with cerebral palsy otr maybe you have it yourself,(forgive me if i spelt it wrong) please be sure to let us know how you found out your child had it or what you went therough and what symptoms they had .teach others about the disease.

Blog

01
Jan
bugs

To Libbylincoln

by bugsComment Published at 02:3602:361 comments1 comments16 Visits16 VisitsReport

Just to let you know.... cerebral palsy is not a "disease".  It is not something you can catch off someone else.   Just had to get that off my chest.

27
May
2008
payal

mild cp

by payalComment Published at 13:4913:490 comments0 comments16 Visits16 VisitsReport

hi,

my daughter who is 21 months has mild cp affecting her left arm and leg...she was born at 42 weeks 4.02oz and really tiny..doc called her inverto growth retardation....i found out something was wrong as early as 3 months...keya would not do tummy time and fist her palms...

she has been having physio and occupational therapy and her therapist say that she is a joy to work on...she too walks on her toes and still fists her left palm but really works hard on her conditions....

have done her cat scan and mri and have found a scar on her right side which explains her cp....

but all said and done....she is a beautiful child....intelligent and strong will power to fight against the odds....she now has a wonderful vacabulary and imitates her dad and me....sometimes i wonder if she is too good to be true...

wont trade her for anything in this world......

 

12
May
2007
sara11

Taking what live send you's

by sara11Comment Published at 03:3503:350 comments0 comments15 Visits15 VisitsReport
rebekah was diagnoised at 18 months but i knew something was wrong .At first was very upset wondering what future she had.Put watching her grow as normal in many ways going to am main stream school I am proud of her and the way she excepts it and trys every challange .Most school work she sails through put most sport is out of the question.Her dream is to be a doctor so she can help people like her all this and she is only 8 Sara
11
May
2007
sara11

rebekah

by sara11Comment Published at 23:1923:190 comments0 comments14 Visits14 VisitsReport
My youngest was born at 27 weeks and has got mild cerebral palsy she is  very bright and 8 years old but walks on her toes .Has had botox which works for a while .At the moment I am waiting on her having a gait test to see next treatment Rebekah has has a feeding button .In some ways the mild cerbral palsey is harder to get treatment for dont think that I would want her woarst but just wish they could look to the furture and think helping them now might mean they could lead a productive life do you know what I mean Sara
04
Nov
2006
Jenbor

Sam's CP

by JenborComment Published at 19:5419:540 comments0 comments93 Visits93 VisitsReport
My eldest son Sam was diagnosed with very mild Cerebral Palsy in Dec 2002.

He was a premmie baby, born 8 weeks early, due to a placental abruption. The labour was 24 hours long as the hospital prolonged the delivery to enable me to have steroid injections to help develop his lungs.

During the birth, the umbilical cord was wrapped around his neck, causing him to turn blue. He was ventilated for 16 hours. While he was still in hospital, he had a bleed in his brain, but they could not tell us how this would affect him, although they said it was only a minor bleed.

He had always been slow to do things, but this was put down to the fact that he was prem. However, when he started to go to daycare, they noticed things about him that didn't seem right for his age. So they suggested that we take him to a paediatrician to have him checked out.

The main symptom he had was walking on his toes constantly. This caused him to trip over his own feet as his centre of gravity was off. He also had very poor hand control, so simple things like drawing and dressing were a real chore.

He was diagnosed with hemiplegia, as both his right arm and leg were affected. However, both his legs are affected as the muscles will not relax enough for his heels to touch the ground, therefore he walks on his toes all the time.

We had plaster casting done to try and stretch the muscles in his legs, and then he had AFO's (ankle foot orthotics). This seemed to work for approx 6 months, but now when he has a growth spurt, he goes back to walking on his toes, so stretching exercises need to be done.

His fine motor skills are not the best. He is left handed, but we are unsure if he is naturally left handed, or is left handed because of the weakness in his right hand.

The school in our town has been fantastic. They have a Special Education Unit, but he is not bad enough to have to go there, so he is in the mainstream school. They have him involved in all the programs they can to help him with his fine motor skills, and this is ongoing. 
06
Oct
2006
libbylincoln

WELCOME

by libbylincolnComment Published at 18:0718:070 comments0 comments139 Visits139 VisitsReport
Welcome to Minti cerebral plasy group group

please be sure to feel free to blog here about your experiences on this horrible disease.

Members

libbylincoln
libbylinco
ln
Jenbor
Jenbor
kristy2
kristy2
payal
payal