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Autism


For members dealing with the issue of Autism

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04
Oct
Cazbelle

quick introduction

by CazbelleComment Published at 21:3021:300 comments0 comments5 Visits5 VisitsReport

Hello all,

Just a quick introduction at the moment,..

Im Carrin, just turned 30 Mum of 4 boys, live in Melb, Australia.  my number 2 son Alex 7 (almost 8)  is going through the whole process of being diagnosed with high fuctioning autism, the school were the ones to alert me late last year and we are slowly getting some answer.  

Well just wanted to say Hi for now, look forward to any tips/advice and to maybe help or share my experiences as well.

Thanks

 

28
Sep
libbylincoln

is autistic child what would you do in my place?

by libbylincolnComment Published at 21:0221:021 comments1 comments38 Visits38 VisitsReport
OK SO I ask....what would you do in my place ..to all parents who have austistic children and even those who dnt .if this was your son or your children would you be angry..or would you be understanding ?what would eb your reaction.

ok so last year i had my oldest son chris who is now 13 and in hight school and my daughter and my son austin who has autism in the same school,apaprt from a couple of incidents where my son left the school ground without anyone noticing ,we were understanding and took it as a mistaken that would never happen again.my kids were all well liked and were popular all the kids were nice to them and he had a carer who was with him in the playground to make sure he wouldent get into trouble or bullied and in class to help him with work.
there was only one incident where my oldest got in charge of solving when he was still at the school and that was when my son austin was told to go to teh girls toilets as a joke cause the older kids though it was funny,austin did not know wany better.
whenhe used to say swear words we used to ignore it as he never new the meanings to them .he just though it was words said by kids and adults when angry,but over time the teachers beagn to make a big deal out of it even after we asked them to ignore it as it was a solution we thought would work.but by punishing him he began to use the words to attack us and get attention instead .
once the old principal moved school and the new one moved in.i was not happy,my son 2 times left the school ground for starters,once because he saw dad and decided to follow him home ,hubby noticed him as he got closer to home and heard austin calling out to him,the teachers never new he was gone.when i went there mad as anything the principal was saying she has experience with austic kids and i told her "NO U DNT YOU GET TO SEND THEM HOME AT THE END OF THE DAY..READING BOOKS DNT MAKE YOU AN EXPERT".. she said hubby shoudl start taking another way home so austin dnt see him.
he had just come from the shop and we have friends who live across from the school,hubby was talking to them when austin saw them so now she is saying we are not allowed to visit those friends when our kids are at lunch.or go to the shops around that time ,just so our kids dnt see us ..i guess having a cup of cofee and chatting was more important then watching kids ...the other time austin walked home because he was upset .the result was "THE CARERS WERE BEING SWITCHED AND INSTEAD OF ONE WAITING FOR THE OTHER TO COME OUT SHE WENT INSIDE AND THE OTHER WAS A FEW MINUTES LATE TO GO OUTSIDE SO AUSTIN WAS LEFT ALONE FOR 5 Minutes "
anough time to run home we live 15 minutes away walk,2 road,in this area cars get driven really fast adn people dnt pay attention adn austin dnt know the road rules whch means he could have run across and got run over by a speeding car .
now as time goes by austins grades as i see them go lower and he hates going to school and he is no longer the placid,lovable,polite young man he was ,he is rude,agressive and has an atitude.
i have no clue how to handle him sometimes .
when he hits another child they put him in the blue chair,and tell him that he shouldent do things like that.
or send him to the principals office who makes him read a book about how to beahve ,he is a 9 year old is a 3 year olds body as if he would understand what we are trying to teach him? he hardly understands when i talk to him.
then once he was rude or miss beahved and there was a birthday party on and they sat him in a chair at a table and made him sit there and watch the kids eat cakes adn weets and have fun ahe he was watching them and was getting more angry...I WONDER WHY?how cruel.
eeryday ive asked austin how his day was during dinner and he tells me he got into trouble because he hit a kid,when i ask him why he said the kids hit him frst.
austin has never lied,jhas no reason too and dnt know how to,he has never been violent and the only time he hits is when he is hit first.teachers punish austin casue most of the time he is caught at it not the other child ,but i dnt think they bother to ask austin.
some kids take toys to school wehn they know they are not allowed to do it ,when austin is playing with their toys and they want them back instead of asking the teacher for help they try to take it from austin..lol like taking a bone from a dog..not a good idea..
but what tipped me off the edge was when i wrote in a letter thart i wanted to know everything that happen in a daily basis,yet we get told nothing .very busy people they are i guess.
yesterday a kid was eating and spat his food out of his mouth adn told austin to eat it the discusting shit ,teacher must have found out or seen it and never told scott when he picked up austin but told the principal at the end of the day,but in the morning scott still never got told ,another kid who was friends with my oldest told scott who went to the principals office and told him,they had a meeting and would let us know what they were going to do later.scott was not happy,but when he got home he told me annd i just went bonkers ,i got up got dressed and walked to the school,scott rang them in advance ,i called the eduvcation department and they were on her side as usual,as if we dnt have the right to be told everything.
i told them in a past meeting in a ncie way"if austin takes a dump i want to know about it " they though i was joking i guess .how m i suppose to work out how to take care of him and deal with his problems if we get left in the dark.?
when i got there both izzy and austin had their bags and ready to be taken out.the principal did not want to talk to me becuase i was being loud and was not talking nice..so i told her"iam past being nice i tried that u did not listen..you just stuffed around with the wrong family and messed with the worng mother..your a poor excuse for a principal and what happen is discustin this school is discustin"
HOW COULD I NOT BE ANGRY? i have enough on my plate...we shoud be able to take ou kids to school adn know they are happy,safe and learning well....i dnt think my son is getting that..
then when there is a lice spread at the school izzy always gets sent home ..but not the other kids?why her hair is done 2 times a day brushed 50 times each time ,i check it and its clean she gets to school and at least 1 times every couple of mths she gets sent home cause a teacher seen a lice wal;king on her hair..what about the other girls ??/checked them ??not allowed to check kids hairs they say...what were they doing looking in mine then???then to top it off they say not hats in class ,i put a scarf on her so she dnt catch them and when it falls off they dnt bother putting it back on ..no wonder....
austin a few mths back came home with pissy pants ..he is toilet trained for the past year,,why ???? cause the teacher tied the pants so tight he could not undo them and neither could scott so he couldent hold on to the bladder and he had to walk home with pissy pants ..
WHAT WOULD BE YOUR REACTION TO ALL THIS ???? M I OVER REACTING OR DO I HAVE GOOD REASON TO EB ANGRY..
ive taken the kids out and contacted the papers ,dnt know if they would eb interested but iam feed up.i may have to pay fo a private school which is next to my place but in a pension ii may not be able to afford it ,and even though iam capable of teaching my kdis at home ,with number 6 arriving i dnt know if i will ahve enough time to do it all..... my son austin
06
Jun
libbylincoln

RAISING FUNDS

by libbylincolnComment Published at 00:1400:140 comments0 comments9 Visits9 VisitsReport

i hoep you guys dont mind i wasent sure if i could open a group to raise funds for a righteous dog for my son austin who has autism i found about this dogs on facebook and  applied for one but the waiting list is as log as your arm at 18 mth minimum wait and we have to raise $29,000 towards the dogs training hope many of my friends will join .

http://www.facebook.com/photo_search.php?oid=102564947800&view=all#/group.php?gid=102564947800

in case you have problems with the link the group is called :

HELP RAISE FUNDS TO GIVE AUSTIN AN AUTISM ASSATANCE DOG

 

17
May
libbylincoln

my boy is off the rails

by libbylincolnComment Published at 22:1822:180 comments0 comments10 Visits10 VisitsReport

well lately we have been having allot of problems  with austin his swearing is now effecting his school grades and teachersare doing nothing as usual to help.

he usually has good grades but his latest grades were below anything i would expect ,he refuses to do any work andhe tells the teachers where to go still .

i have to call the autism society and see how they can help ..austin nevere had any problems when he had the carer but now they gave him fredom and they are letting him be a normal boy hell has broken lose and things have gone from bad to worst.

any ideas?

13
Apr
libbylincoln

isolation how do you cope?

by libbylincolnComment Published at 19:3919:392 comments2 comments17 Visits17 VisitsReport

what is it with some familys and friends who just seem to desapear when you most need them ...

who else has had this happen to them ?

i come from a large family and iam used to the big partys and fun outings ,but this was back where i was born in portugal when i moved to australia nothing much changed until i moved out on my own .while i lived with my father and step mother i had mates at school i wasent so isolated ...i wasent one of the popular kids but i had mates and i was going to partys and sleep overs then i got married and everything changed in my life i meet a bunch of diferent people .

my mother in law who i want to kill .

i mean my husband is great and we have a couple of friends not excellent ones but reliable ones and throught the years we had together we noticed no one cares .

we had our first son in 99 he was autistic and as soon as we found out its like the sun came out and so did the truth .

his mother neber comes to visit ,never calls ,when she turns up once every 6 tmhs she does it when the kids are not home ,she dont give them gifts and expects us to egt her some she done call on their birthdays she forgets ,she dont even call for hubby to see how he is doing ..even when we lost our babys she still did not care .neither does his siblings his sister or brother...or nephews no one .

then there is our so called friends some live in melbourne and some here ,they only turn up when they are getting something out of it .

we have partys they sometimes dont tun up,we need a baby sitter no one will do it ,and they never visit even theough they have cars and money ,while we dont .its driving me mad .

does anyone else have this problem ?where all your mates and family disapeared or dont bother to visit specially cause you ahve an austistic child ?

maybe i have watched to much tv i guess .why cant our lives be like "friends" or neighbours ....

iam sick of being isolated .

sometimes i wish i could go HOME

01
Mar
Suzii

Autistic tempeture

by SuziiComment Published at 05:5205:520 comments0 comments12 Visits12 VisitsReport

Last friday was 36c  the morning was a little chilly so I 'd sent my autistic preppie daughter to school with a windcheater however when I returned to pick her up that afternoon it came to my attention she still had it on I had previously brought this to the attention of those involved teacher,aids and principle on 2 other separate occassions.. Upon pick up time students were in the assembly hall and my daughter was the only child still wearing a windcheater I could'nt believe it unless my autistic princess is made aware to that it's hot and that she can take her windcheater off she will continue to wear it all through a hot day I wondered what sort of aid she had that day? And wheather they had the common sence to take their top off as the temp increased?

What do other parent think / experience with the school aids of their autistic children?

12
Jan
libbylincoln

youtube autism clip

by libbylincolnComment Published at 16:3616:360 comments0 comments11 Visits11 VisitsReport

well i ahve decided to make a new clip for autism for awareness on youtube .anyone who would like to add their kids to the clip send me and email with their pictures ,any kind ,could be funny ones ,sad ones ,normal ones ,any help apreciated .my email is fairysquizzy@yahoo.com.au

 

08
Jan
Suzii

Mom's need time out too!

by SuziiComment Published at 06:3606:361 comments1 comments12 Visits12 VisitsReport

G'day to all the great Mom's of autistic children.

The Other week I was so over the whole dealing with people cause of X-mas sick of the kids squabbles  so needed time out I rang their father and demanded he take both kids (which onlys happens once in a blue moon!) But I figured No let him be a parent. After all it took the 2 of us to multiple right and why should he be the only loved one cause he dosent have them long enuff to be Mr Mean. Well I was lucky enough to get 6 hrs but at least it was something just to hear what silence sounded like again.  So Moms what I trying to say is by hook or by crook get some time out for yourself  and if you can't get time alone try and divide the numbers so  you get quallity time with each child and play that broken record .  It's hard being a parent it's even harder being a parent of Autistic children.

This is an little diddy someone cool tought me wright 10 Things you are gratefull for,3 Thing You Did Successfully & 3 Lucky Things that happened to You - One rule they must all be positive things you've focussed on and written for your eye's only.The outcome = you feel your spirits picked up.

Much love,Hugs and Kisses.

06
Jan
libbylincoln

my boy

by libbylincolnComment Published at 20:5120:511 comments1 comments15 Visits15 VisitsReport

this is austin he is 9 hes my autistic boy.he went from being a nice ,polite boy,at the age of 8 to being a boy who not only swears but smacks children .the school has let me down becuase i tried asking for their help and explain how we do things and they dont losten they think they know better and now we are coping the afermath.it horrible and we dont have much choice as its the only school in our area adn with no car we dont have options grrrrr

05
Jan
libbylincoln

autism and kids WHAT M I TO DO

by libbylincolnComment Published at 18:5218:522 comments2 comments29 Visits29 VisitsReport

iam at my wits end .

i dont know what to do anymore

my oldest son no matter what i do cant understand or care about his siblings .

my 9 year old has autism and has the brain of a 2-3 year old ,very little speech ,just finished his toilet training ,but he swears really bad ,when he used to swear 2 years ago we ignored it and nothing came of it as he got no reaction and it was working .but then the teachers began reacting to it and my oldests son who is 13 his mates started to tech my austin how to swear more and now its f this and f that and go f yourself and we tried smacking and dont wok ,we tried stickers ,dont work ,we tried the norty corner,dont work ,we send him to his room adn it gets worst ,adn when we talk to him and nicely explain that he cant use them words ,he goes quiet then as soon as you get up and you think you got throught o him he wait till you turn your back and his off .

no matter what we do we cant win.

i had a break down a few days ago when my oldest through a toy at my 4 year old and him him in the head ,my autistic son went off at my oldests and started to swear and my oldest hit him 2 times and i went off .

i tried to explain that his brother cant help whats he is doing .

i showed him the movie "the  black balloon" then i made a clip on youtube  about austin and he still dont get it .

what m i to do .i tried everything .iam at my wits end .

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