Strabismus and Lazy Eye » Group

Hi all i dont know if i really belong here as my son doesnt have Strabismus or a lazy eye, What he does have is called Dwaynes Syndrome

With Dwaynes the eye jsut will not turn outwards . The way it was explained to me is that the muscles that pull the eye out basically are dead, there is no way of correcting the eye without an operation but as he has learnt to work with it they wont think about it. They would only do this if his eye was permanently turned one way but he has coped rather well as his right eye can look straight ahead and to the left it jsut wont look outwards.

People dont ever really notice this but he has learnt at 11 that it is a great party trick. He is an amazing field hockey player and it has never stopped him.

I feel for all those of children who have a lazy eye as we spent a lot of time getting tests and stuff for that jsut to discover it wasnt a lazy eye at all .

Anyway hope yas didnt mind me havin a chat and would love to make new friends especially in Brisbane

 

My son has a lazy eye.  We did the patch therapy with him and it was really successful.  We were very diligent about it.  He still has a really strong prescription for his glasses though.

Just jumping in and hoping to learn and perhaps help others.  My almost nine yo son lives with cerebral palsy, HF autism and strabismus/lazy eye.  We have run the spectrum with patching, eye exercises and one strabismus surgery and at least one more to go.  But hey, we'll do whatever it takes for the health of those "windows to the soul".

BTW I could not get a pic to upload in this post.  But I'll work on it.

 

We went and saw the Opthamolagist today (Codi's eye specialist) and one of the outcomes was that I start diarising what we are doing with our observation that Codi's eyes get better and he learns to adjust them properly by himself whilst in the swing. I think I blogged about it before that our specialist was curious and excited. Lately, we haven't been so diligent with the swing treatment, and his eyes have gotten worse than when we were swinging three times a day his lazy eye was hardly noticable. So now we are going to track this observation of using the swing as a another tool in helping to correct the lazy eye condition and see if there is any substance to what we observed by chance when we started to put Codi in the swing. Apparently, it seems that there is substance to the middle ear playing a part with the muscles of the eye and movement, which the swing movement (our specialist mentions) maybe have some link...fingers crossed.

So I will be reporting over the next 4-6months on the results of the Swing Chart I am making up today...

TRACKING
*How often his is in the swing each day
*How long each swing goes for
*% improvement of eyes during the day

Hoping to highlight any relation between the swing and his improvement of his eyes over 4-6 months...then we may be able to recruit other parents to conduct the same thing and see if it works for them too...you may like to try and let me know...

My eldest daughter also has what appears to be a lazy eye. About once every 2 or 3 months her right eye will turn in for about a week. I think it has something to do with stress, as it only happens when something stressful happens for her. After reading this advice you guys have written, I think I'll get her checked out after Christmas...... I've heard eye exercises often work. Is this true? Are the outcomes usually an operation or glasses?

As a mother who has a lazy eye. I too was born with it & had 3 operationns on my left eye, but there's nothing more they can do except that I wear glasses for the rest of my life! Although the teasing got too much for me in high school so I ditched them & my grades unfortunetly went with them. With my own son I am keeping an eagle eye on his as the poor little rascal could even be colour blind as I am a carrier for it. I will keep you postered.

here is a photo i caught the other day of codi's eye wondering...


he still does this about 30-40% of the time, and when we notice it we slowly run our hand infront of his good eye to force his other eye to focus... he then blinks and his eyes are realigned.

here is a better shot just minutes later...

codi's eyes are certainly much better since he had the op over a year ago.
about 70% of the time his eyes seem to be aligned, and when they are not we try ask him to use both his eyes and sometimes her blinks and they reset correctly, other times we caress our hand slowly over his good eye so it temporarily makes the lazy eye take over and then they reset correctly.
I think the older he gets the more he is understanding when they are not aligned, so I am hopeful he will not need to have surgery again.

here is a fairly recent photo, and i must say its not the best photo i could have chosen to use...


below is a photo before the op...

My girl has been wearing glasses for a few months now. She has an appt now. She has gone with her Dad. She has a patch but hasn't been wearing it. Tsk tsk. There was some confusion on which is her lazy eye!

Alyssa had her appointment today.  The orthoptist is so wonderful with her...much better than the ophthalmologist.  She is quiet happy with her small but positive progress.  It really does appear that Alyssa's eyes are beginning to correct....still good and bad days.  There was a stage where her condition was worsening; and if it has only gotten marginly better, things aren't worse.  Her vision on both sides are equal, which means they will not patch at this stage.

yet another appointment on 6th December.