Aspergers Support Group

Hey all,

Finally got Alex diagonsed as having Aspergers.. took almost a year but we got there.  

Now where to from here??  We just had our follow up appt with the paediatrician yesterday but unfortunatly the Psychologist we seen hadnt sent her full report yet.  So we now have a new psychologist to contact (as the one we seen was a 'diagnosis pyscholohist, not sure what the difference is) and have upto 5 sessions with her and possibly speech as well.  Seems like we are starting all over again but glad we have our first answer and now to make a plan of how to help from here.  

My real question now is, how do I go about telling Alex (his older brother & Etc) that he has Aspergers?  How did you all go about that topic?  He has been asking me why we have to keep seeing all these Dr's and I have just told him we just need to have a chat about behaviour. 

What about friends/parents of friends etc? Alex has recently found a best friend who loves to come over and play and Alex has gone over to his has a few times, his friend asked him to have a sleep over and Alex didnt want to. (I didnt think he would)  My family know we have been going through the process of getting a diagnosis and all have been understanding, just nNot looking forward to have the chat with his older brother as he can be quite mean and I dont want him to try use this is something to tease him about.   

Well hopefully I can get some advice from you all.. 

Thanks for your time

 

I know DOCS in australia has a bad name but they have a program called Brighter Futures which I have found great. They are giving me a one on one training session to help me with the aspie side of Shane and also helped with some costs relating to Shanes medical and psychological wellbeing.

 

Hi,

Just joined. I'm amazed that all these stories are so similar to mine.

My son is 12, and I knew there was something different about him from about 3 years old. He had problems at creche which followed onto problems at school. Like many others here, he could read at an early age and is really quite bright. But his behaviour was 'off'.
He was almost impossible to get out of the house to go to school. I got him a counsellor who was fantastic and made some headway there. But behaviour at school was still not great. His Grade 1 teacher set him up with the school counsellor and that should have been a godsend. The counsellor left the school after a couple of months not much help there.
I took him to the dr for ADD/ ADHD but he didn't think my son had this. A couple of other counsellors came and went.. but no real advice or help. The chopping and changing as it turns out was not beneficial at all for a kid with AS!!
We eventually got a psychologist at the school when he was in grade 4(he's in grade 6 now), who was the godsend. She kept in constant contact with me after his sessions and narrowed it down to possibly Autism. YAY! I wasn't going mad. Further testing diagnosed Aspergers.

I'm so grateful to have a 'label'. It made it so much easier to deal with his behaviour. I stopped getting mad at him for playing up and after googling my head off, got heaps of tid-bits of advice.

He is coming along great now. No pre-packaged foods, as little preservatives as possible and fresh food. He has his moments and is always the centre of his world, but we deal with it.

Good luck to everyone :)

Hi all,

Just wanted to do a quick introduction as I have just joined this group.

Im a mum of 4 boys, my 2nd son Alex (7) is going through assesments at the moment as the school thinks he has high fuctioning autism ( I think he may have aspergers from reading up about it on the net)

Our Pedeatrition*(?) isnt 100% convinced that he has Autism so we are still doing more testing and now have to wait to see a pyschologist on the 23rd of this month which I am really looking forward to.

Anyways I just wanted to say hi for now and look forward to making/reading more blogs soon.

Carrin

Its been a difficult year so far but are on the way up now. Shane has been suffering from severe bullying for the first 6 months, since my brother and I approached dept of education and DOCS shane is getting more assistance at school. Although still very difficult for him, I am learning that you have to be very vocal and tough to get help which is appalling. I also have found that allowing others to help me discipline does not work, it is very confusing. Whilst a family member took over and disciplined shane his behaviour detiorated, once I stopped allowing this shanes behaviour dramatically improved. Only 1 chief works for these kids thats for sure.

On Wednesday we start at the Neurofeedback clinic in Coffs will let you know how it goes. Plus Shane has now been diagnosed with Sensory defensiveness and needs regular therapressure. Unbelieveable more and more is learn't when you see an OT. Ours is fantastic

what tests are done to diagnose aspergers coz al that happened with my son was a point checklist and an hour of observation (with him with adults-no kids) and then three weeks of my own diary taking as well as the day care centre he attends.

 

Doing a 3 day workshop. Its brilliant when I can I will type up notes. Trying stuff out on shane already and for the first time in months he started the night in his OWN bed. Will keep you posted

Marg

visit went really well. Got to speak to a specialist for an hour and set up some solutions which will come out in a report soon. I left feeling that Shaney may be ok after all. I have been so scared as I want the best for him. He is so unhappy and I fear that if we do not sort things out for him that he will sink too far into himself to save him. So hopefully this is a corner and now we are on the right path

hi i am looking for some insite from a sufferer of aspergers about a situation as i do not suffer it and well not sure what to make of it.

my hubby wanted some space to sort himself out (he suffers for aspergers) any ways he has taken a lease out for sixe months which i have not stood in his way actually i was proud of him wanting to take steps to help hime self with his giving up smoking and other stuff.

any way our lease has come up where me and the kids are living of which he is still on the lease as it was expected that he would mpove back after his spell out of here.

when the lease arrived i rang and told him he then told me in aggressive mannere that he was in no way signing that lease as it was way too much money. which left me kinda speech less as well what was i supose to do given that there has been no sign of him being ready to return yet.

i sat on it for a couple of days and then asked him about it he said he never said that when i told him that yes he did he then changed his story to saying that he was joking about not signing the lease can i not take a joke any more.

when i said that he did not sound like he was joking he then told me that he will never joke again.

please help me interprte this confusing mess.

my thoughts were that his first reaction was the trueest and that i should follow that

please let me know your thoughts