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Speaking Member » Ametrine » Blog » Not realy wanting to repeat my...

30
May

Not realy wanting to repeat myself !!!!!!!

Comment Published at 05:5005:503 comments3 comments25 Visits25 VisitsReport

BUT WERE STILL WATING!!!!!! Stewart phoned this morning to see what was happening with our replacement water boiler ? The short story is quote. Were on a list with a load of others wating to have their boilers replaced as well. Were not down as a prioty so they don't know when it will be done. Un quote. Full stop. nothing alse we can do but wate it out. Stewart's the one who's suffering the most as he needs to soak in the bath to help relive his arthritus, and no one we know has a bath they all live in smaller places with showers. If we try to fill the bath ( which is one of those old heavy duty ones, not the new light weight ones ), then by the time we have enough to sit in it's gone cool. Well enough on that subject....

I've been a little incommunicardo the last few weeks, I'v just had to compleat my yearly ' why I carn't work ' form, it's been sent out a whole 4 months early? un fortunatly it allways sends me into a down ward cycle. It's both humiliating and demoralizing haveing to list all your dissabilities and problems for someone your never going to meet, to decide weather your fit to work or not.  They won't take your doctors word for it any more, It's just you don't think about every thing every day as a subject, it just is, and you get on with it, but when you have to list them all out, then I don't lnow about anyone alse, it leaves me feeling a wreck,  And this time I now have 4 months instead of one, to worry if I'll have to go in for a personal medical with one of their, supposed, independant  doctors. Sigh ! I keep telling them that one of my problems is going out, and having to talk to people.

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MrsSanders
May 31st | MrsSanders
Re: Not realy wanting to repeat myself !!!!!!!

Jeepers girl, not good, infact downright unacceptable in this day and age. Grrrrrrrrrr. Forms of the official persuation I am sure, were set up by a sadist who enjoys the stress they cause to folks. Whatever happend to "if your circumstances change"????? . I feel for you Lisa. The last Doctor to come through our door to assess me Dad was handed his kit back within ten minutes, and politely told "here's your hat whats your hurry". The idiot was trying to get my Dad to do excersises that would cause further trauma on his poor old spine. The remit seems to be, prove them to be shirkers reguardless of consiquence.

I hope your spirits pick up a bit and all I can say is that you are in my thoughts. Take care of you.

Luv Winnie.xxxx



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DarkenedAngel
May 30th | DarkenedAngel
Re: Not realy wanting to repeat myself !!!!!!!

The water boiler problem is still going on? That's absurd. As for the unable to work thing, I'm in the same boat as you in that regard, I'm now on a disability pension and it was seriously doing my head in for a while there as I was so used to being so very active and always had a paid job, a volunteer job, and study of some sort going on all at once. To suddenly stop and that's the end of that, it's damn hard to get used to, and it is hard to deal with other people's opinions as well. When they don't know how hard I used to work and they see me now, they can only assume that I've always been that way and I've got not idea what it's like to work long hard hours and earn large sums of money. They assume I've always been dependant on others, when in fact it was always others that were dependant on me. It's a major blow to my self-esteem, which wasn't the best to start with! So I fully understand where you're coming from there matey. You're not alone in that regards.



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      Ametrine
May 31st | Ametrine
Re: Not realy wanting to repeat myself !!!!!!!

It is hard to hand over the normal day to day things I've always taken for granted. Do you ever get use to feeling useless? I have to stand by now and watch... but I expect you do the same... or do you try to joine in as 'normal' then regret it for the next few days? sigh the people who make these disigions possiblay don't even know any one to see how thins effet those who carn't do. I have C F S it's been steadaly getting worse since 1982 when my son was bourn...it's the treating you as if it's your mind that's effected that realy annoys me, then when I show I'm 'all there' they say being so intulectulal goes aganst me as if the only people who are 'realy 'sick are thick. sigh. we just get on don't we :-)



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