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Kimberly got her third tooth on Thanksgiving day! She was running a fever 100.7 for 2 days, I was giving her Tylenol every four hours and she was so grumpy, waking up every hour. Then I gave her some pumpkin pie (just the filling) since it was Thanksgiving, and she started chewing on her shirt alot. She slobbered all down the front of it and just was gnawing away, so I felt and sure enough top on her left side. Then that night she was much better, no fever. Doing great now, still not crawling, rolling everywhere. Smiling all the time, she is such a happy kid! I am blessed. Right now she has a runny nose so maybe the fourth tooth is on its way. |
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We went back for the test results and we got great news, we dont have to go back for a year! Unless Kimber starts messing with her nose like it bothers her. They are still not sure what it is, they think most likely that it is a strawberry hemangioma under the skin instead of on top. But they cant be sure. Now Kimbers weighs 22 pounds and 4 ounces, well as of last Wednesday, she is growing so fast! She is rolling over and can sit up if I sit her up, She cant stop herself from falling over yet, but we are working on that one. And she doesnt sleep through the night yet, but I know she will soon. I am excited just thinking about sleeping and not getting up twice a night! lol. |
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Kimberly no longer has an apnea monitor, finally! At her last well baby check they said no more. She got all of her shots and the flu shot, she only cried for about 10 seconds or so. Now I have to get all the kids the flu shot. Kimberly right now has a cough and a sneeze and runny nose, she is extremely grumpy. To say the least. I just got her to sleep, hopefully she will feel better when she wakes up. We are going camping at the end of the month, and then my husband is taking our 12 year old daughter, Cheyenne, deer hunting in Colorado. If she has good grades. So she is trying. I have tons to do before all the kids get home, so till I have more time....:) |
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So we went back to Stanford Childrens hospital on the 10th of Aug. Kimberly had a MRI, and they had to use antestesia to sedate her in order to do a contrast dye via IV. So then we got to stay overnight for observation, due to her apnea issues, which she has not had an episode for about 3 weeks! WOO WOO... we go back in November to the vascular anomolie clinic again, the radiologist and drs are still not sure what it is on her nose. But the great news is the epidermal nevus is only skin deep, it does not continue through her soft tissues. Or bone. :) She is almost 6 months old, and she rolled over yesterday for the first time. She is doing so great! I will post more pics soon. |
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So we went back, to the Vascular Anomoley Clinic. I talked to one dr, then another dr, then 8 drs came in, it was crowded! Lol. Then the pediatric Ear nose and throat specialist left and went and got another dr to come in, all the drs examined her nose, a few examined her nevus, and one looked over all of her skin, they talked to me about her nose and I told them how when she cries it gets darker almost black, so after they were turning her head and pushing on her nose she began to cry, and sure enough it darkened. then one dr said it actually enlarges the tip of her nose when she cries. so they all looked again. Then the went out and two came back to talk to me about treatment. They want me to bring her back for an MRI, but to do an MRI in an infant they said they do it under general antestesia, so I am of course worried about that. They said an MRI is the best way for them to diagnose what type of hemanginoma it is. OR it could be a specific kind of cyst that occurs in infants while in the womb. They are concerned about her stopping breathing and that there is still no reason why. It is begining to upset me because her pediatrician never downloads the info from her monitor, and it has a memory on it, and it is 59 percent full, I want to know why she stops breathing and why they are not trying to figure out why. So next time it happens I am going to ask to be refered to a respitrory specialist. Doing nothing is not something I feel comfortable with. Kimbers appointment was at 2 yesterday, so I left about 10:15. and got back home at 7:50. It made for a long day. Traffic is so bad in the bay area! It took me over an hour to go 15 miles. I am going to look into taking the BART. I saw a station a few blocks from the hospital, and that would save me that area of traffic and bridge tolls. I would have to drive about 50 miles then take a train the rest. And that is the worst part, the area where the train would take me. Now I just have to wait for them to scheduel the anthestesia study. (SP) |
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Kimberly has an epidermal nevus on her left cheek, it is a brith defect, it can have serious complications involving eye malflormations, skeletal malformations, seizures, retardation, (its easiest to google it) So far I have had her eyes tested twice by a renologist (sp) and he said her eyes seem fine. We have had the normal preemie head ultrasound done and it was fine.
So we went to the Childrens clinic at Stanford, they said all we can do at this point is keep an eye on the epidermal nevus on her cheek, if it begins to change then I have to bring her back. Not really great news because there is so much not known about this condition, and this specialist had never encountered this condition before. :( Kimberly also has a few small visible blood vestles on her nose, to begin with it appeared bruised, but it has not gone away. So I had them look at that, and I was kind of surprised with what they said, the dr wants us to come back to a vascular clinic that they hold once a month because her condion can cause her nose to not grow properly, either by not growing at all or by rapid growth, so we are meeting with a team of drs next month so they can decide the best treatment, and as soon as possible to stop it from getting worse.
Kimberly is still wearing a monitor, but mostly at night, unless it goes off during the night then I keep it on her for the next 48 hours. She has only stopped breathing once, and that was very frightning! Since we had the maching settings lowered for her pulse rate it has not went off for low pulse, now it is set to go off at 60 beats per minute.
My other kiddos are such great helps, they are still wanting to help, I know soon that will change but for now I love it. I was worried because Kimberly wasnt interacting at all, no smiles or cooing, but that all changed this past week, she has been making the cooing sounds and even a small giggle. And finally she looked at the rattle toy I bought her. I just keep trying to get her to look at it, at me at anything, and she is!
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Kimberly will be 3 months old on Friday, and we see a specialist that day for her face. She is growing so much! At her last check up she was 10 pounds 7 ounces. But only 21 inches long. Then dr seemed concerned with this, I am keeping my fingers crossed that it is just because she is a preemie. The kids are out of school for the summer, Cole is doing a 4 week program called Kinder Camp, so he is there 4 days a week for 4 hours a day. My older girls are cleaning their room, I gave them 3 days, no TV, no DS, no computer, and no stereo and by 12 noon today what isnt cleaned up is going in the trash, so then finally are in there right now, but I am not going to give them any more time. They had plenty. I need to do the same thing, my house is a mess! So after Friday I will update what the dr says about Kimmie |
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Today has been a long one, this morning Kimberlys monitor began going off, when I checked it I thought it cant be right, she looks fine, and was awake, I reset it and checked her leads, and it went off again, and again and again. Her heart rate wasw 20 bpm. I listened to her chest still thinking something was wrong with the machine, but it was beating slow. Right now she is awake looking around, but I am not leaving the room she is in just in case. I sure hope she outgrows this soon!
I placed an add on craigslist for formula coupons and I got really lucky, a lady who works at a dr office gave me 10 $5.00 off coupons and 3 cans of the formula.. We got Kimberlys first bill from the hospital and it was over $300,000. More than what we paid for our house, so since I know more bills will be rolling in I am looking for ways to save money. :) |
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She is 8 weeks old today. She is sleeping pretty good, she wakes up to eat but goes right back to sleep. I think because I dont turn on the lights and make a lot of noise, I just change her and feed her quietly. Cole loves her so much! Every time I change her he throws the diaper away, he wont let anyone else do it. He made a flower and a rainbow at school and he asked me to hang them near her bassinet. Kimberly gets shots soon, and I think Khiley is due for a booster, I want to make sure I keep up on that with this swine flu thing going around. I sure hope that it goes away as quickly as it appeared. I have been watching Jon and Kate plus 8, Those kids are so cute. ( I think all kids are cute) Now my kids want to go to the zoo, and chocolate town. I did take them to a local zoo that is very small, they had fun. When Kimberly is a little older and the weather is warmer I want to take them to the San Francisco zoo and the Sacramento zoo. We are planning a trip to Yosemite. I think the kids will really like it, and I have never been so I cant wait. Cheyenne is going to outdoor education camp Monday, and coming home on Thursday, then both of the older girls are going to cowgirl camp in June. Getting busy! |
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We thought we would get to bring Kimberly home thiss week, but we had another small setback. Yesterday she quit breathing twice, so now we have to wait 5 more days. Other than that there is nothing going on. My ubby and I will be celebrating our 12 year wedding anniversary on Sunday. I was hoping that she would be home for that. Maybe she will be home in time for Easter..... this is her at 19 days old |
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