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Talking Member » mom2jedd » Blog

18
Aug

Home from Surgery!!!

Comment Published at 19:1519:155 comments5 comments38 Visits38 VisitsReport

We are home. Things went well.

For the long story check out Jedd's caringbridge site.

He was in the OR for about3 hours. They closed the fistula and he came out of sedatin fine but in alot of pain. It took about 30-45 mins to get it completely under control. I had to fight for morphine for him. I mean, really, he just has his penis cut on, get the boy some morphine!!!! LOL After a good dose he did great. He mostly just wanted to get HOME!!!!

They gave him some Versed (anxiety med) to help him be OK with leaving us and going away to the O.R. This was a good plan as he really had a difficult time just oign back to triage and getting vitals.

The worse part of the day really was waiting an extra 2 hours because they were running way behind schedule to day.

But, he's in bed sound asleep. I gave him some Motrin and will wake him here in a bit for some Tylenol. I want to keep that pain away for good.

Thanks for the thoughts and prayers everyone!!!

17
Aug

Surgery Time

Comment Published at 19:3819:383 comments3 comments28 Visits28 VisitsReport

We will arrive at the surgery center on the 3rd floor of the children's hosp. at 9:00 for check in.

They will take Jedd back at 11:00 for his repair. Thanks for your thoughts.

I updated his Caring Bridge site tonight as well. The link is on my homepage.

 

16
Aug

Another Suregry, Could use Thoughts and Prayers Please.

Comment Published at 19:1419:144 comments4 comments30 Visits30 VisitsReport

Jedd will be going back to the O.R. this Tuuesday, Aug. 18. I do not know the time yet, as I have to call tomorrow morning.

He is having his hypospadias done again. A surgery that was to take one repair is now on it's third. :-( I'm worried.

For those of you who don't know, he had a malformed urethra at birth. This is what a hypospadias is. Since the last repair, he has another fistula "hole" that is dripping urine. He is also bending pretty good to one side when he pees in the potty.

Please pray he won't have alot of post op swelling this time. I think that may be the root of the issue of the repairs failing, he swells and breaks the stitches.

Just pray that all things go well.

12
Feb

This Will Be A Hard Blog To Write

Comment Published at 19:5919:5912 comments12 comments109 Visits109 VisitsReport

If you haven't noticed I haven't been around much lately.

About 5 weeks ago I found out I was expecting. It was a one time deal. We didin't use protection once and BAM I am knocked up!!! LMAO But seriously our life got turned upside down. I have NO Health Insurance. So this was NOT a good thing.

After a week we settled into the idea that we would have to go along with the curve ball life had thrown at us.

The bleeding started about that point. I was in a panic as I CAN'T go see a DR. I have NO coverage. I scrambled and call every type of clinic I could think of. NOONE would see me period. If you don't have insurance and can't pay out of pocket they won't even schedule you for a visit. GREAT isn't it.

I started the massive red tape that is government insurance.  I fought with them to get the right papers sent away and the right forms filled out.  All the while, I am still bleeding. Not only that, I have a history of Tubal Pregnancies so I really really needed to get seen to rule that out so I would not DIE!!! Literally.

After 4 weeks of this I'd had enough and went to the local ER to get seen. It shoudl get covered since the paper work I sent off was dated prior to that visit. HOEPFULLY. If not we are out a few thousand dollars.

My HCG levels were only at 58 at the time they drew them then. So basically unless some type of miracle comes through we have lost this baby.

This is my 3rd one and it hurts worse than any of the others. Maybe because we have Jedd now, I don't know. I just know it hurts. ALOT. Period.

I am now in the acceptance phase of this grieving BTW. There was a time when I went through all the whys. I actually asked God why. I mean why did it take 6.5 years to concieve Jedd only to get pregnant on the first try only to miscarry. Life seemed so unfair.

I already got a letter in the mail from the government program saying we are accepted as long as we can prove we are US citizens.

Life has been rough, but with all we have been through with Jedd and now this, well, we will survive some  how.

Thanks for all your thoughts. I know Pia has put in a prayer request for me one of the groups and for that I am grateful. ((HUGS))

24
Dec
2008

One More Hour Till Christmas

Comment Published at 20:1020:102 comments2 comments57 Visits57 VisitsReport

Yes, we are still one hour away form the big da so I will be headed to bed soon.

I was sitting here thinking about how good life is. Yes, Jedd has his issues but in his little over 2 years we have been able to spend Christmas at home all three years. We have never had to spend Christmas Day in the hosptial with him.

God is good, right.

I know many children tonight who are getting tucked into a strange bed while hooked to I.V.s and lots of monitors. Soem of them are critically ill.

I know some still, who have NEVER spent a Christmas IN their own home. They are always ill at Christmas due to he Winter whether durign our holidays.

I guess we are luckier than I thought.

I count my blessings this year. Jedd has been healthy all Winter long. He hasn't really gotten ill at all. This is his best winter so far by a mile.

So, as you are opening your presents, be it right now, or in a few hours, count your blessings. I most certainly am. I cannot believe the difference a couple of years makes.

This was Jedd's first Christmas, see how lethargic he was.....

This was last year, notice a difference....

And this was a day ago....sorry about the size.....it was my most recent.....

Here is a better one that was taken in early Oct.

You have healthy kids. I have a healthy kid for the first time in his life. And you know what, LIfe is Good.

That's all we can truly ask for at Christmas time.

Have a very Merry Christmas, XOXO Jessica AKA mom2jedd

18
Dec
2008

OMGosh I WON A TIKE!!!!!!

Comment Published at 18:4318:4315 comments15 comments95 Visits95 VisitsReport

I allowed to type in all caps right!!!!!!!

I never win anything. I AM SOO EXCITED!!!

WHOOHOO!!!!

I can't wait till it gets here to try it out on Jedd!!!!!

12.gif

.....To all of those who passes tikes to me and return them to me when I bought you one!!!!!

It sure was fun to spread the Minti love!!! Wasn't it!!!!

I edited to add a pix of my little man!!!!!

 

07
Dec
2008

Help Need Job Advice!! What Would You Do!!!!!

Comment Published at 18:2318:234 comments4 comments60 Visits60 VisitsReport

So as you may remember (or not..LOL) I took a job in a banquet room over taking a job at a local restarount (Texas Roadhouse) DH and I decided to do the job at the banquet room because I we thought I could stick it out for about 6 months and then try to switch over to their dinning room where there is good good money to be made. (It's a 4Star restaraunt)

Here is my delima......

I have heard from others who have been there a long time that after the holidays the bookings in the banquet room pretty much fades to NOTHING!!!!!

That means for me, as an on call position, that I will pretty much be not working....at all. The full time get called/scheduled first, then the part timers get called/scheduled next THEN if they need us the on call wokers get called, that's ME....

ON top of that I made it perfectly clear that I could NOT be scheudled before 4:00p.m. because DH could not get home until 3:45 leaving me 15mins to hightail it to work (do-able, they are super close to home) Well, they continue to schedule me for 3:00 and 3:30. That's impossible.

Now, because I'm "new" I don't want to ruffle feathers so I have been asking my Mom to come over for the in between time to watch Jedd. Now, my Mom CAN'T keep doing this... she has to leave her work come to my house wait for DH then go back to work and wokr later since she lost work time. Her work is VERY understanding but I can't keep doing that....she is my ONLY babysitter. NOONE else knows how to care for Jedd and get him to drink or eat or take meds...I have NO other option as far as babysitters goes....(for more on my medically needy Jedd ready my past blogs)

So, what would you do....?????

Oh and I also have another manadotry meeting during the day again....I can't do that, they are just going to have to have it without me. This is the second time they did this, last time my Mom watched Jedd for me...*sheesh*

I don't understand WHY all the "new" workers who are scheduled to work night shifts have to come to a meeting during the DAY!!! Makes NO sense to me. I'ts scheduled from 10:00a.m. to 2:00p.m. I just don't get that...KWIM...

03
Dec
2008

Blog Tagged by Toosh

Comment Published at 09:3209:326 comments6 comments41 Visits41 VisitsReport

So here are my answers:

1. Whats the main thing on minti that make you so addicted?

I seem to be addivcted to jsut strolling through and reading. I also like ot once and a whiel add something to alol of my friends Lounges....LOL

2. whats something funny thats happened to you recently?

When Jedd was in the Operating Room the other day, I went to go to the bathroom becasuse I needed to pee....LOL When I pulled my pants up I realized my underwear were on inside out!!!! LMAO *sigh* can you tell I was a bit stressed.....hehehehehehe

3. whats a word you kid/s say/said thats pronounces funny / cute?

He likes to call Elephants "Ellas" or "Ellies" It is his all time favorite animal right now.

4. if you could be someone famous for a day who would it be and why?

Not sure, probably someone who has alot of money but doens't work hard...LOL That way I would not have to worry aobut JEdd's medical bills AND I would have th etime to spend taking him to therapies he needs but we can't afford..... :(

5. sum up what minti means for you in 5 words.

Friends who care.

Now I"l off to minti mail 5 peopel.

02
Dec
2008

Jedd Heads to the O.R. in a Few Hours!!!!

Comment Published at 04:1104:119 comments9 comments38 Visits38 VisitsReport

Please pray that:

1) He will go with the nurses without any screaming or kicking. We are very worried about this since he is much older this time. And no we can't go with him, we aren't allowed to at our hospital.

2) He will only need to have his fistula reapired and that it will NOT be a full Hypospadias repair. I am really dreading taking care of him again if he needs the full repair, it was NOT fun last time, he was in lots of pain at every diaper change for 2 weeks.

3) His erection test on the table will be okay. They need to do one (don't ask me how they do this...LOL) to make sure he healed straight from the last operation in May.

4) He will not go into vomits-ville like last time after being intibated and extibated....we are fully prepared this time and I have an RX at home for double his current dose of Axid to keep him pain free GI wise form his reflux/GERD.

5) He will continue to eat after surgery. This is the first surgery he will go through being copletely oral, so it will be a true test for his feeding aversion.

6) He will NOT have any post-op swelling like last time. I am going to ask and see if we can go home maybe with an anti-inflamitory this time around.

If he needs the full repair I will take a jog over to the adjoining adult hospital and log on to CB and post an update. Baring that I will update when we come home later in the evening when things settle down some. He is scheduled for 4 hours in the OR just in case it is needed.

They start at 10:45. We have to arrive at 8:45.

Thanks for the thougths and prayers!!!!!!

Please please pray that this will be the LAST one!!!!! We soo didn't want to have to do this one but we had NO choice the last repair failed.

Here is his CB site for updates:

http://www.caringbridge.org/visit/jedd

 

26
Nov
2008

MY Little Man's Tattoos!!!!

Comment Published at 18:2618:267 comments7 comments212 Visits212 VisitsReport

He's such a ham, and he loves it sooo much...LOL Here he is!!!!!

A close up of his arm....

My "tuff" guy!!

Lounging around!!!

One BIG smile!!!

 

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