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  Children  
 
Jedd, male
3 years old
 
 
 
  On Minti Since:
April 2007
 
 
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Visit Jedd at his Caring Bridge site. We'd love to hear from you!!!!!! I do all of his medical updates on there. You can also sign up to recieve e-mail notification when I update his site.

http://www.caringbridge.org/visit/jedd

 

Update (Aug 08) Jedd is now completely oral. He eats stage 2 baby foods as well as liquids only. This is no ttypical of a 21 month old but for his past track record it is amazing. He is on a very strict eating schedule so he can maintain his current weight and gain slowly. We are jsut glad to be out of the failure to thrive department for once in our lives!!!! Fro the first tmiie we are only using  his feeding tube for medications. Hopefully in the future he will take them orally. But right now he won't.

Jedd looks amazingly healthy for all the medical struggles he has gone through. To look at him form the outside you would never know that his chest is covered in surgical scars. At least these scars will fade one day but th ememories will NEVER go away......

He has had 5 trips to the OR with 1 more left. After this one he will be done hopefully. His hypospaidas repair will need to be re-done...:( We were hoping for a one shot deal but it was NOT meant to be. His urethra part of th erepair went fine but he had an unusual amount of sweeling on the skin graph so he needs to have part of the srugery repaired. We knew this going into his last surgery but was praying against that happening.

 




 

 

My name is Jessica and I am 31, officially out of my 20's. My hubby's name is Jedd and he is 33. We have been married for 9 years. After 2 miscarriages and ...

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Advice

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Helping Children Through Blood DrawsJuly 27th (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend)
My Child is Getting Ear TubesSeptember 2008 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend)
Traveling With a Medically Needy Child/PersonMarch 2008 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend)
Tips to Help Ease RefluxDecember 2007 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend)
Severe Reflux In Children (& some tube feeding info.)December 2007 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend)

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Blog

18
Aug

Home from Surgery!!!

Comment Published at 19:1519:155 comments5 comments38 Visits38 VisitsReport

We are home. Things went well.

For the long story check out Jedd's caringbridge site.

He was in the OR for about3 hours. They closed the fistula and he came out of sedatin fine but in alot of pain. It took about 30-45 mins to get it completely under control. I had to fight for morphine for him. I mean, really, he just has his penis cut on, get the boy some morphine!!!! LOL After a good dose he did great. He mostly just wanted to get HOME!!!!

They gave him some Versed (anxiety med) to help him be OK with leaving us and going away to the O.R. This was a good plan as he really had a difficult time just oign back to triage and getting vitals.

The worse part of the day really was waiting an extra 2 hours because they were running way behind schedule to day.

But, he's in bed sound asleep. I gave him some Motrin and will wake him here in a bit for some Tylenol. I want to keep that pain away for good.

Thanks for the thoughts and prayers everyone!!!

17
Aug

Surgery Time

Comment Published at 19:3819:383 comments3 comments28 Visits28 VisitsReport

We will arrive at the surgery center on the 3rd floor of the children's hosp. at 9:00 for check in.

They will take Jedd back at 11:00 for his repair. Thanks for your thoughts.

I updated his Caring Bridge site tonight as well. The link is on my homepage.

 

16
Aug

Another Suregry, Could use Thoughts and Prayers Please.

Comment Published at 19:1419:144 comments4 comments29 Visits29 VisitsReport

Jedd will be going back to the O.R. this Tuuesday, Aug. 18. I do not know the time yet, as I have to call tomorrow morning.

He is having his hypospadias done again. A surgery that was to take one repair is now on it's third. :-( I'm worried.

For those of you who don't know, he had a malformed urethra at birth. This is what a hypospadias is. Since the last repair, he has another fistula "hole" that is dripping urine. He is also bending pretty good to one side when he pees in the potty.

Please pray he won't have alot of post op swelling this time. I think that may be the root of the issue of the repairs failing, he swells and breaks the stitches.

Just pray that all things go well.

12
Feb

This Will Be A Hard Blog To Write

Comment Published at 19:5919:5912 comments12 comments107 Visits107 VisitsReport

If you haven't noticed I haven't been around much lately.

About 5 weeks ago I found out I was expecting. It was a one time deal. We didin't use protection once and BAM I am knocked up!!! LMAO But seriously our life got turned upside down. I have NO Health Insurance. So this was NOT a good thing.

After a week we settled into the idea that we would have to go along with the curve ball life had thrown at us.

The bleeding started about that point. I was in a panic as I CAN'T go see a DR. I have NO coverage. I scrambled and call every type of clinic I could think of. NOONE would see me period. If you don't have insurance and can't pay out of pocket they won't even schedule you for a visit. GREAT isn't it.

I started the massive red tape that is government insurance.  I fought with them to get the right papers sent away and the right forms filled out.  All the while, I am still bleeding. Not only that, I have a history of Tubal Pregnancies so I really really needed to get seen to rule that out so I would not DIE!!! Literally.

After 4 weeks of this I'd had enough and went to the local ER to get seen. It shoudl get covered since the paper work I sent off was dated prior to that visit. HOEPFULLY. If not we are out a few thousand dollars.

My HCG levels were only at 58 at the time they drew them then. So basically unless some type of miracle comes through we have lost this baby.

This is my 3rd one and it hurts worse than any of the others. Maybe because we have Jedd now, I don't know. I just know it hurts. ALOT. Period.

I am now in the acceptance phase of this grieving BTW. There was a time when I went through all the whys. I actually asked God why. I mean why did it take 6.5 years to concieve Jedd only to get pregnant on the first try only to miscarry. Life seemed so unfair.

I already got a letter in the mail from the government program saying we are accepted as long as we can prove we are US citizens.

Life has been rough, but with all we have been through with Jedd and now this, well, we will survive some  how.

Thanks for all your thoughts. I know Pia has put in a prayer request for me one of the groups and for that I am grateful. ((HUGS))

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