lunch time

Home-after heart surgery

sitting w/ mommy

Little Slugger

Beach Time

Visit Jedd at his Caring Bridge site. We'd love to hear from you!!!!!! I do all of his medical updates on there. You can also sign up to recieve e-mail notification when I update his site.

http://www.caringbridge.org/visit/jedd

Update (Aug 08) Jedd is now completely oral. He eats stage 2 baby foods as well as liquids only. This is no ttypical of a 21 month old but for his past track record it is amazing. He is on a very strict eating schedule so he can maintain his current weight and gain slowly. We are jsut glad to be out of the failure to thrive department for once in our lives!!!! Fro the first tmiie we are only using  his feeding tube for medications. Hopefully in the future he will take them orally. But right now he won't.

Jedd looks amazingly healthy for all the medical struggles he has gone through. To look at him form the outside you would never know that his chest is covered in surgical scars. At least these scars will fade one day but th ememories will NEVER go away......

He has had 5 trips to the OR with 1 more left. After this one he will be done hopefully. His hypospaidas repair will need to be re-done...:( We were hoping for a one shot deal but it was NOT meant to be. His urethra part of th erepair went fine but he had an unusual amount of sweeling on the skin graph so he needs to have part of the srugery repaired. We knew this going into his last surgery but was praying against that happening.

My name is Jessica and I am 31, officially out of my 20's. My hubby's name is Jedd and he is 33. We have been married for 9 years. After 2 miscarriages and 6 years we have our hands full with "Little" Jedd. (See my advice for congential heart defects for the hand full part). Other than the defect and the feeding tube he is a happy go luckly little guy for all he goes thru. We live in the USA.

Jedd has some medical issues of which we ar trying to get resolved. He had very severe reflux and for a long time it was out of control. Because of this, he refused to eat any longer and is now prodominetly tube fed. He has recently started to take some formula orally which is a true miracle....we are overjoyed. He can't do any solids, even baby food, it will cause him to gag and vomit. He is not used to the texture and doesn't know what to do with it...LOL