Back again...I've missed being online, but as I seem to be stuck in the house waiting on ppl day in day out what the hell...

This week is wearing me down we had an accident with Baileys meds saturday night....smashed bugger! had to be the one thats specially ordered and taked 3-5 working days to get from manufacturer, leavimng us with the counter version that isnt designed for kids it stinks and he vomits it back after chocking on it....in our favour no chemist had that so we had to revert to tablets which are great cheacked with his consualtant he can stay on tabs if hes keeping them down, Then the Doctors get involved gp recpetionists really think they are sommat huh ended up we 5 days worth now his consultants on sick so cant tell them im ordering as agreed bugger bugger bugger!!!

Baileys appointment for his mri came through and meeting we sugeon and op date total mess sorted that now anouther letter hes also having an eeg 24hr tape done on 30th...panic over he can come home with it on but were back nxt day to get results.....some notice would have been nice thats 2 days we out pay for Bobby.

i hope nxt wk runs more smoothly I seem to have been on the phoner all week talking to ppl that know absolutely nothing about my son his needs or his condition yet im in the wrong????

Now I have to drop a driving lesson a wk untill Baileys op coz i aint gonna pass b4 and im running outta my lessons we family fund....although if i went auto id pass in no time, he doesnt seem to think i sld but then were getting an automatic car so why am i wasting my time putting myself under pressure and a whole lotta stress I cld do we out??? The point of me driving was to get Bailey to his app without putting ppl out for lifts, getting me some freedom and independance and security that if he needs rushing in I can get him there faster than the ambulance cld get to me......well mission failed coz the seizures returned as we hoped wldnt now ill have ppl trailing bk n forth from manchester, its all a huge mess that we just cldnt help, and i hate the fact thats its all out of my hands.

Winge over for today, but im sure someone will see fit to wind me up again soon, its always the way ....xx