Hi guys wow a mnth since i blogged doesnt seem that long at all,

  soo much has happened forget all the money crap its all still as was a mnth ago, our main let down was baileys op being cancelled im furious after i ensured we attended every appoinment had all tests they needed iii rearranged appoinments to ensure the results wld have been prosessed before his op as they were trying to book mri 2 days after duhhhh, its been a nightmare.

then they lied to mee they begun steroid treatment after his eeg showed caiotic activity 24/7, i asked before it begun will he be having op on 21st yea yea its all sorted....like hell it was, it was written all over there faces but i explained he needs to book time off work if he books it he must take it then, were screwed if u change date a mnth this went on for yea yea crap, 7 days before op i get a call cancelled!!!!!! when i asked why she told me anuther little boy needed that slot more urgently.

it was only after id gone ok whens new date etc put phone down sobbed like a baby that i thought,,,,hang on if he needed that slot soo badly i wldnt be getting 7 days notice but i told all the family had my rants etc but felt a little guilty for being mad too because of the little boy.

the nxt week we had anouher eeg for bailey it showed the steroid treatment had done a fantastic job to date he has been seizures free for 12 days and were currently weaning him off....yayayyyyyy

i also gt the oppertunity to speak with the specialist who said i believe the ops been put bk as we needed his brain activity to calm down so we cld see were they stem from and ur surgeon wld like him to be steroid free!!!!! yea i knew that, im 27 yrs old and i was treated like a mug, i get why they have done it now thats been explained what i dont get is why they didnt tell us ??? the surgeons sec who lied is off this week but im furious with her, what an awful lie id rather she said i dont know, but i was soo upset for bailey but accepted that he was stable and thats this other poorly child needed priority.

The op has been put bk to 16th november only a few week away now but i only found that out last wk and i have had to ring them to push for letter confirming it, but ill flip if they change it now as he only has 3 more shots and thats nothing to the doses he has been on so the seizures will be bk in no time, just hope weve balanced it right?????

As life desided to give us anouther crappy mnth we desided that we'd fight bk, and have a halloween party!!!!! life may be crap, most of the time actually but i choose nt to accept it haha im stubbern as hell, it will get better......right???

now must go gt baileys jab in 10min, then a house to get rdy ive thrown all caution to the wind to mk this party a sucsess lets hope it looks good ???? will prob load pics to facebook haha i usually do, just think i post almost anything so what r the pics i wont post be like??????????????

cya xxxxxxxxx