ADVICE RATING |
 4.99 (Highly recommend) from 18 votes (272 Visits) |
Hello everyone, its 2:52 in the morning over here in the states and once again I am unable to sleep due to pain. I thought maybe writing on the computer while my meds kick in will help me release some emotions and tire me out. So here it is,
the one thing I seem to know alot about these days.
I am a 25 year old mother of two beautiful kids, and I am a step mom to 4 great kids as well. July of last year I was diagnosed with Cervical cancer and endomitriosis. I have under gone 3 surgeries and still battling it. The first doctor I had preformed the full hysterectomy, and did a really chop shop job of it. By this I mean he messed up my body bad. Not only did he leave in a great amount of endomitriosis, he left in my right ovarie that showed signs of cancer. To top all this off I got a staff infection, this is a infection patients recieve from unsanitary tool, or a careless doctor. 6 months later, still in pain and barely able to move we decided to find another doctor to see if maybe its something else, that doctor ran tests and gave us the bad news. The endomitriosis that was left in there grew more due to the fact that my body was still creating hormones that helps it grow. For the really bad news, it was I am very sorry but the endromitriosis attatched to your left lung, attatched your intestines to your stomach lining, which caused your intestines to get knotted. Above all my blood work and test showed cancer cells still as well. The new doctor put me under once again, but was unable to get it all out the first time without the help of a lung specialist because the parts it attatched to where difficult to reach. The third time under they got it off my lungs as best they could, and attempted to remove it from other places where it built up heavily. Now that the right ovary was removed we all thought I could heal and go back to a semi normal life, how wrong we were! My tests are still showing cancer cells from where we have no clue and we continue to do tests and treatments. Their best guess is a cyst popped and the fluid caused cancer. So we are currently trying treatments and several meds to keep the pain at bay. I am always tired and in pain but I still have a family to care for.
So you have the history of my past now to my advice for you. Living with cancer is not easy, specially when you are a parent. My husband works several hours a week, and my family is well..... not really there. So to you moms and dads living with pain, not able to work, and have the kids at home with you alone here are some helpful ways to distract your kids minds and allow you to rest. On a good day, I will cook dinner and let the kids help, on a bad day my husbands mother brings dinner or we order in. When I am super tired and unable to get out of bed I will have my kids read a book to me while I lay and rest, or we will turn a movie on and cuddle together. We do several arts and craft projects that we hang around my room for company while they are at school. If its nice out, we will go outside and while the kids jump on trampoline or play in swing set, sand box, I lay in a cot type bed and read a book or film them playing. But by far the best way to keep my kids occupied is for me to turn on the Wii game and let them play while I watch from the coutch.
Now thanks to travelingmom I have a few more things to do. Today my little girl had a blast brushing my hair and putting it in funny hairstyles while my son made me celery with peanut butter on it. They pretended to be my parents and I was their kid. It worked out great, I was able to rest and the kids had fun!
I pray no one needs this advice for its not fun dealing with a situation like this, but if it is ever needed I hope it helps in some way. My last advice to you is treasure every waking moment, every healthy moment, and every moment you can while you still have a life to live. With everything thats going on in my life at the moment, I learned to treasure my good days that I can play with my kids and my bad days where I have my kids to cuddle up to!!! Please dont take life or your health for granted, you never know when it will be taken away from you.
Rebecca
(November 2008) (
