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Living with asthma.

Leanne08 by Leanne08 In Nappies(November 21st) (rank 500+)

My son, Jaxon, was only four months old when he had his first asthma attack and it was the most terrorfying thing that I have ever experienced.  Here's this defenseless little baby, relying on you to take care of him and keep him safe, but you can't make him better...you

can't take it away from him.  I remember watching his little chest heave in and out as he struggled to take the shallowest breaths.  I panicked, and looking back now I can safely say that it was the worst thing I could have done.  Not only did it affect my judgement to a certain degree, but Jaxon picked up on my anxiety and this made him more upset.

I took him to many doctors in the next 12 months and all of them said that it was just a viral infection and to keep giving him lots of fluid and panadol if he got a fever and he'd be allright.  But he wasn't allright.  We would end up in the emergency room at least a twice a month, more if he was sick with a cold.  We'd usually have to stay in the children's ward for about a week before he was well enough to go home.  So as you can see, the hospital was our second home. 

It was so frustrating and I found myself becoming more irate with each doctor's visit.  I knew that this was not normal, that something was wrong but I was told that it was just a bug going around.  Finally I came across a doctor that knew what he was talking about.  He said that babies can develop asthma, especially if there is a family history.  He told me that doctors don't like to diagnose asthma before the child is about 1 or 2 years old and that ventolin is not very effective for babies.  Finally some answers!

He gave us a script for a steroid to open up Jaxon's lungs.  We could only us it for three days and only a few times a year.  He said to keep trying ventolin anyway as it may do a little bit of good.  So we invested in a mask and spacer.  The mask and spacer is meant to be very effective, but it wasn't very good when Jaxon was distressed and wouldn't take a proper breath in whilst trying to wrip the mask off his face.  We looked around for an alternative and found a nebuliser.  It's a machine that also has a mask and it uses a liquid form of ventolin which it turns into a mist that the child can inhale through the mask.  This was our saviour!  Jaxon would sit with his mask on and breath in the ventolin mist over about 20 minutes or so.  It still worked if he was upset as the dose was spaced over a period of time unlike the spacer.

Some other things the doctor advised us to do were:

- cut out any pre-packaged food to avoid any harmful preservatives.

- vacuum every day to get rid of dust mites, (dust mites are an asthma trigger).

- change his pillow case daily to eliminate any dust mites.

- try to avoid any dogs or cats, even birds, as their fur and feathers harbor mites.

- don't let him exercise in the night air or in very cold or hot air.  Also, avoid extreme temperature changes.

-  always avoid taking him near any smoke.

- start giving him omega 3 capsules (only for children one year old or older)

Over the years Jaxon has had more asthma attacks than I can count and those early days were deffinately the worst.  My advice to any mother who has a child with symptoms such as: wheezing, coughing, fast breathing rate, fast heart rate, struggling for breath, mottled skin, is to keep seeking help until you are satisfied.  Sometimes doctors tend to look at mothers like they are worriers who are prone to over-reacting.  Just remember that you know your child best and you know when there is something wrong.  I was once sent away from a doctor's surgery with nothing but the advice to keep giving him panadol, and I found out later that afternoon in the emergency room that he had consolidated pneumonia.....so doctor's don't always know best.

Asthma is managable and your child will most likely have a very normal existence and will be able to do anything he or she wants to.  Jaxon is 5 and a half now.  He takes a preventer puffer every morning and night and he hasn't been back to hospital in over a year.  Many babies that develop asthma grow out of it before their teenage years.  It's really important to seek the advice of a good doctor and develop a good asthma management plan.  Once you are confident in implementing your management plan you won't look back.

All the best and good luck.

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KathrynR1402
November 21st | KathrynR1402
Re: Living with asthma.

Thanks for sharing. What an awful experience for you. My first experience of asthma with DD1 was when she was about 1 year 9 months and it was just a persistent night cough in about June. I only suspected what it was when one of my friends with a child a year older was diagnosed with the same symptoms, but her mum, a nurse, said not to bother going to the doctor until my DD2 was 2 as they wouldnt be interested. It was a troublesome cough but nothing like the attack that Jaxon had, or I would have been living at the hospital too! When it returned a year later I decided she was nearly 3 and after a month of night coughing I headed to the doctor armed with our family history and she was put on ventolin with a spacer, which helped for a bit and then stopped working, so she was put on the brown preventer inhaler, which helped to control it so well that she hardly needs the ventolin. DH is the same so he always hears her wheezing before I do. She is fairly resistant to the blue inhaler - maybe she doesnt like it??? I reward her for taking the brown inhaler with one fish-oil capsule morning and night, which she likes the fruity flavours of. So I was interested to see it listed in your doctors recommendations!



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veejay
November 21st | veejay
Re: Living with asthma.

good read

I was diognosed with asthma when I was about 6 that's fifty years ago I had a mother who would not put me in hospital hence we learnt to manage it all by ourselves of course we had medication not like nowadays 

it was very primative and I underwent tests like kneedles ten at a time to see what I was allergic to and when I get a hint of asthma I stay away from certain foods but all is good   



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Pumba06
November 21st | Pumba06
Re: Living with asthma.

Thanks for sharing this and I am glad Jaxon does not have the frequent trips to the hospital. I am going through with my 2 year old currently  what you must have already been through. This year alone I think we have been on at least 8 scripts of steriods and he also has a nebuliser and spacer with ventolin. Finally this week he has been pu ton a preventative (twice a day) so you have given me hope that the long nights of bed side vigil at the hospital might reduce.

Thank you



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