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Parents who have children with Fragile X syndrome

undertaker2008 by undertaker2008 In Nappies(December 2008) (rank 500+)

I have a three year old son who was a breach baby and had to bought into this world via 'C' section. We had a few problem with the birth for when he came out  he was purple and wasn't breathing, but they revived him and he was ok. As

time went by and my boy was growing up I notice that something wasn't  quite right with him. I notice that all the other kids that was born around the same time where walking and starting to talk. By his first birthday he still wasn't talking and was doing the comando crawl, I started to think maybe he's just a slow starter. As the months went by my parter at the time was asking other parents who's child was born around the same time wheather or not this was normal. Some said yes other said no. So we took him for a few test to find out what they could come up with. After seeing specialist after specialist someone finally told us what was wrong with our boy. We were told that he has Fragile X Syndrome and that he needed to have specialist come to our home to teach our son and to bring him up to speed for his age. So every week we had a speech theropist, a councilor and a few other specialist I cant for the life of me remember but they all helped him to get where he is now. When he turned two he was starting to say words properly and was crawling properly as well but still hadn't started walking yet. Me being a first time dad I was still very worried about my son and I still had no idea what Fragile X was all about, so I decided to look it up on the internet to find out what I could do to help because by this time my partner and I had seperated and I want to be a good father towards him and support him. So I looked it up and found out that Fragile X is a breakdown of the X cromazon which can slow the learning process for that child. After reading the chart that showing how a child can get the syndrome it Showed that it is a gein past on by through the Family on either side. For examble if you have a Girl and she has fragile X it could be past on be either the father or the mother but if you have a boy then it would unfortunatly come from the mothers side of the family. It also stated that it could course the child to have A.D.D, A.D.H.D, But if you take control of it early and see the signs it will stop the child from getting those discorders. My son is now three years old and is finally walking and talking and if full of beans and life.

My advice to those parents out there who's children have this syndrome is not to worry everything will be ok. There is alot of people and specialist out there that can help and if you ever need somemore infomation I more than happy to give it.

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Sueblimely
December 2008 | Sueblimely
Re: Parents who have children with Fragile X syndrome

Fragile X Syndrome is the most common known inherited form of intellectual disability and a major cause of autism and autistic like symptoms.  Although it is so common and around one in 250 women are carriers the condition is not yet well known.



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Amerlinwinga
December 2008 | Amerlinwinga
Re: Parents who have children with Fragile X syndrome

I also never heard this b4! Thanks for sharing with us.



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llmunchkin
December 2008 | llmunchkin
Re: Parents who have children with Fragile X syndrome

That's very interesting, I had not heard of Fragile X before either.  Do they manage to successfully treat all children diagnosed with this syndrome?



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Ju0101
December 2008 | Ju0101
Re: Parents who have children with Fragile X syndrome

Thank you.  Although neither of mine have it a friends daughter does.  I had not heard of Fragile X until this year,



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