Living normally

Hi,
I know exactly where u are coming from.  Doug also has itp.  We go through the same thing, the worries.  But he has to be a kid.  Our family song is "live like you were dying" by tim mcgraw

I think that this is good advice whether your child has a medical condition or not, I always meet the parents, I know I am over protective, and my kids have only stayed the night at one school friends house, but I got to know the mom first, and I gave her my numbers, but I think from now on I will include a info note with their sleepover supplies, just in case.  Hmmm, I think I see advice coming on that one! lol

I just don't know how you do it! You are an inspiration to all! So brave! This is such a fantastic piece of advice! I don't know how i would cope if something ever happened to emily! I guess it's just called motherly instinct. I'd probably just shower her with motherly love
God Bless you all!
Love Kayla. Mwah.

And I admire you!

Your FAB Lexi - I can't imagine having to go through that. Such a sensible idea to take the info - you're raising awareness aswell as allowing your daughter to have a normal life.

5 STARS to you!

Hey Lexi, I so  know what you are going through, I think about you and Brielle all the time now.

Im also scared to let Hayley go for sleep overs or even going anywhere without me, but I do try and be as leiniet as possible ,  xxx

how many amazing parents there are here on minti.....and Lexi, you are not exception....

We all have our dark corners to face and some more than others....but when you read articles such as this, it inspires you in so many ways...

Thank you for writing this.....

Lavinia

You're doing a great job Lexi. In everything you write you show a really strong sense of character and a very caring, compassionate nature. Your love for your daughter shines through you making sure she is always well looked after even when she isn't with Number 1 (you!). You're doing a fantastic job ensuring she feels safe and secure, not having to worry about her illness the way you do. It sounds like a very difficult task and I hope that if my son ever gets sick I can take a leaf out of your book and be the guiding light you are. Well done!!! Hayley xxx

Lexi that is fantastic that you can do that.......I also think it is important but that people treat your child as normal too not look at her as poor thing etc.... if that makes sense....... My friend blackwidowkate has a daughter with cystic fibrosis and I watch people look at Jalan and say poor thing etc and treat her different......She like you daughter needs to be raised as normal as possible......and Deb does this just other people need to realize this too......When I was growing up I had a friend who had an illness and she was treated like us all same times playing same things we all did the only difference was she had medication and she sometimes could not do exacly what we all did but her parents raised her normally and as she grew up that was the one thing she always said I am so glad my parents gave me an as close to normal life as they could............. You are an awesome mum Lexi.........This is great advice
Mwah
Cheers
Angie

It seems to me that the biological father cannot sem to accept the responsibility.  However, you mentioned that you discuss your worries and concerns with your husband.  If this is workinbg for you, why bother wasting energy about her biological father?  Don't.

In reguard to your daughter's friends having her over for play dates and sleep overs, one PERFECT way to alleviate your anxieties would be to do what happened in my neighbourhood when I was growing up.  I was raised in a small town of about 400 people.  Whenever somneone's child made a new friend, that child's parents also introduced themselves to the new friend's parents.  In doing this, not only did the kids become good friends, but the parents ALSO became good friends.  Doing this over the years created and community bond that is unbelieveably strong and close.  Everyone looks ouit for everyone else, if any child has ANY problem, they simply go to the nearest house and they know beyond the shadow of a doubt that when they knock on the door and the door is opened help will be there for them.  It's FANTASTIC.

If more communities could do this, justy IMAGINE i\the impact it will have.

 

That is amazing, what you are dong for your daughter, I can totally understand all your worries and concerns but that is great that you are able to put her first and act in her best interests allowing her a normal life, I would be tempted to wrap her in cotton wool and that is no help to anyone. Good on you xx

My sil has similar issues as my niece has a life threatening food allergy.  It is hard to trust others and let go but so important if you can manage it!

It is a wonderful thing you are doing for Brielle,it would be hard enough for her to cope with this disorder but to be excluded from a normal life would be hell.You truly have my admiration Lexi.Very informative article hugs Merle

What a great balance you have achieved between providing Brielle with adequate care and supervision, while still giving her the freedom to enjoy life.  Because of your forthright behaviour, and thoughtfulness, other parents have also been able to learn about her and care for her as well.  She is a very lucky young lady to have such a caring resourceful mum.  Thanks for sharing.