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Children with Bruises 3

lexiw by lexiw Young Parent(January 2007) (rank 10th)

Ok here is the second part to our story.

At this time in our lives blood tests became a normal thing and I have to say that I have never seen a child do as well with it as Brielle did. At first she would just scream and scream

but then I realised that she wasn't trying to pull her arm away she was trying to get me to let her head go. If you have ever been for a blood the person doing it usually asks if you want to look away as most people can't watch it being done. Well with Brielle I held her head away so that she couldn't see and she just fought me tooth and nail. As soon as I realised that she was trying to make me let her head go I did and she calmed down almost immediately and just watched what they were doing to her.

I was so amazed by this that next time when the patholigist was taking her blood ( a few days later ) I let her watch and she only cried a small amount when the blood was actually being drawn out. I was so proud of my little angel that I cried. She wasn't the only one I was proud of though while allthis is happening my eldest child who was only four when Brielle was diagnosed was always asking questions about her sister and asking if there was any way that she could help. She was always well behaved through it all.

Through all this my I left the girls father as I couldn't take any more of his abuse and deal with Brielles illness as well. He was no help and still isn't.

On one trip to the sydney childrens hospital Brielles platelet levels were so low that she had to be given Prednisilone tablets which are a steroid. There are normally 150,000 platelets in the body Brielle had 5,000 and the levels were dropping. At this stage I didn't let anybody touch Brielle but me and my parents I just couldn't take the risk of someone hurting her even by accident as even a small bump to the head could have killed her at this stage.

Aswell as the steroids Brielle had a bone marrow test so that if the steroids didn't work then we would have to do a bone marrow transplant. (Luckily we never had to do the transplant.) I think it was harder for me than it was for her. The only part she seemed to have a problem with was being put to sleep. She looked at me when they put the mask on her face and cried as she said no mummy please no mummy and all I could do was rub her forehead and tell her it was going to be ok that it had to be done. The doctors explained that they were going to insert a very long needle down through Brielles hip into the middle of her hip bone which was going to leave her very sore.

When Brielle woke up she was fine she showed no signs of pain at all and we took her home to recover and return in a week

To be cont.......

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hermy
July 2007 | hermy
Re: Children with Bruises 3
thanks for sharing....regards Sandra xxx


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NickysMumMum
5.00 (Excellent) | January 2007 | NickysMumMum
OMG What you have been through
sends chills up my spine. She wasn't even aloud to bump her head???? My little boy bumps his head continually through the day, recently he's started doing it intentionally because he actually likes it (Weird!!! only lightly though). At he age that she first got the illness she would have been going through the most accident prone time. This must have been so scary for you. And to see your little girl continually having blood taken you are so brave. You're doing a great job Lexi, take care :) Hayley xxx


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kelfa
5.00 (Excellent) | January 2007 | kelfa
hugs xx

I so feel for you and Brielle, reading this also brought me to tears. Sounds like we are living the same life at the moment ! hugs for  you & Brielle  xxx



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JeanTracy
5.00 (Excellent) | January 2007 | JeanTracy
Brielle and Lexi

Dear Lexi,

Brielle is fortunate to have you for a mother.

Your writing made me feel like I was there right with you. Thank your for sharing.

Jean Tracy



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exquisite-flower
5.00 (Excellent) | January 2007 | exquisite-flower
So Brave
What an extraordinary daughter you have.  to be able to not just sit there, but to watch it as well, that is wonderful! 
Peace
EF.x 


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OzBinky
5.00 (Excellent) | January 2007 | OzBinky
and I just keep reading on....

I just don't know what to say matey...

you are a strong woman

 



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mandymum3
5.00 (Excellent) | January 2007 | mandymum3
wow
you and your family are deffiently strong


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breannababy
5.00 (Excellent) | January 2007 | breannababy
AWE
I am in awe of you and your family Lexi,your story bought me to tears.I cant imagine how hard this has been for you and your family.You are all so strong,Brielle is such a strong young lady deffinately her Mums girl .My heart and thoughts are with you all hugs Merle


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