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 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) 4.90 (Highly recommend) from 12 votes (618 Visits)

Siblings of chronically ill children.

lexiw by lexiw Young Parent(January 2007) (rank 10th)

I now want to tell you about Maria and what she went through with Brielle being sick.

Firstly when Brielle was born Maria was 3 1/2 years old. She was very attached to me and was not 100% sure about this new addition taking up her mums time. I

knew then that I had to be careful with making sure that Maria was included and given attention as much as the baby. ( No nap time for me LOL )

When Brielle got sick I stopped paying as much attention to maria as I should have I was so worried about Brielle that I sometimes could only think of her. I did explain to Maria what was going on with her sister and I told her the truth just in terms that she could understand.

Maria was amazing from the time that I sat her down and told her all she wanted to do was help. She was always asking me if Brielle was ok and if Brielle fell down Maria would get more upset than Brielle Which I began to worry about because Maria is a sensitive child and I thought I may have done more harm than good but as Maria got older she would follow Brielle everywhere to try to make sure that Brielle wouldn't hurt herself. She would do everything for Brielle and I mean everything.

Still even now without realizing it Maria watches Brielle and still tries to protect her even though they argue sometimes now. Maria showed me so many times that she could be strong when she needed to be. I have been trying for sometime now to wean Maria off her protectiveness of Brielle because she really needs to have a life of her own. Also Brielle needs to learn to survive without Maria following her around at school.

I wish I had of been able to pick up the signs of Maria's protectiveness sooner so then it wouldn't have gone so far. It is really a beautiful thing to watch siblings care for each other but it can also have some side effects that leave the sibling of a chronically ill child not doing the things they need to grow and learn for themselves.

I hope that this helps someone pick up on the signs earlier than I did.

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anonomous
February 2007 | anonomous
Eventually you have to let go.
My wife was a child with chronic heart disease. She had two open heart surguries by the time she was a young adult and probably will have to have another sometime in her life. Understandably her parents and younger sister have had a difficult time letting her go even though she is now 35 and has two children of her own. Her parents and sibling have had such a difficult time letting go it has caused many problems in our marraige. In addition, those siblings who grow up along side someone with extraordinary needs can be plagued by an unending need for sympathy, the thing they were unfortunately denied as a child because someone else legitimately demanded so much that there really wasn't much left for anyone else. As an adult my sister in law unknowingly searches for ways to be a victim, through her jobs, her family and friends, and through her inability to afford or accomplish the things she wants. She'll ask for more responsibility but then complain about it. She'll accept unreasonable amounts of help but then complain about her lack of independence. She's obtained much of what she has in her adult life at the expense and from the empathy of others. She manipulate people and casts herself as the one who is doing the favors, making sacrifices and watching over others because as a child she perceived that that is what she had to do at her expense of her mom and dad's sympathy. She was denied that stage of growth. She is unable to except this truth because it's overwhelming for her to admit that as an adult she alone is responsible for not reaching her potential. Even though she and her husband are very capable of accomplishing great things, they hamstring themselves as victims and go on living unable to find real fulfullment. Today they live right next door to my wife's parents on acreage given to them to use for free by her parents.


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youngmumof2
5.00 (Excellent) | February 2007 | youngmumof2
Great article

You can't deny they she doesn't love her sister. But i agree with you sometimes being too caring can stop them from becoming who they really are. But how do you teach them not to care too much?



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exquisite-flower
5.00 (Excellent) | January 2007 | exquisite-flower
Alternative also
E is protective of me when I am tired, something that i have been for a while now.  it is hard to break her concern when she sees it and it is in her face.  but I am working on it and she seems to be growing out of it slightly, but there are days when it over rules everything else for her and she just mothers me which feels so wrong, but is kinda sweet
Children should not be so protective of parents
Peace
EF.x 


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Raine
4.46 (Good) | January 2007 | Raine
MOTHERING NUTURING
You sound like you have a very loving & compassionate child there, you are very blessed... It also sounds as if life could be returning to normal as you say 'that Maria still tries to protect Brielle even though they argue sometimes now'. Illness & disability often bring families closer together, creating strong & lasting bonds. As Maria gets older she should become less obsessed with watching over Brielle as she recognizes Brielle is quite able to care for herself; Hopefully the closeness they share will always be there & I may be wrong, but I personally think it's a good thing.


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breannababy
5.00 (Excellent) | January 2007 | breannababy
MOTHERING NUTURING
are probably Maria's natural instincts anyway Lexi,I know I was more interested in my brothers well being than my own life,however we did nearly lose when he was born.......Perhaps she is doing what she is meant hey will naturally be more involved in their own lives.It is a great article for helping other parents to monitor similar situations though regards Merle


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      lexiw
5.00 (Excellent) | January 2007 | lexiw
MOTHERING NUTURING

She does have a very mothering nature but sometimes to the point where she completely forgets about herself . I never really thought that this could be what she is meant to be doing. I just want what is best for her and living her life for someone else at such a young age just dosn't seem fair.

Thanks heaps merle I will definately be thinking about this a bit more now.

 Lexi xxx



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blackwidowkate
5.00 (Excellent) | January 2007 | blackwidowkate
Ill siblings
Hi
Hugs
It is so hard to divide your time when one is sick....we have to be constantly aware of it with Jalan Megan and Rowan.....
They get so resentful somedays yet are so good with ehr others....
Luv Deb


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      lexiw
5.00 (Excellent) | January 2007 | lexiw
Ill siblings

It is hard and I think as long as we do the best we can everything will turn out for the best.

 Lexi xxx



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