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Lazy eye?...Slight turn?...My experience with Duane Syndrome...

cookclan by cookclan Young Parent(February 2007) (rank 12th)
When I was a young child... Even a baby my used to be concerned about the fact that one of my eyes used to actually dissappear when I looked around...She took me to doctor after doctor and all she was told was that I had a lazy eyeand it would correct
itself..She had seen a lazy eye before and was pretty sure that is was not that...She then took me on to optometrists when I was two and had one look at me again she was told I had a lazy eye...She decided to take me to another optometrist who told her it was not lazy eye at all he thought it was a slight turn that could rectify itself but reffered us on to an optomologist...By the time I got into him I was 4 years old and was no longer using my right eye fully...

I did quiet a few tests with this doctor and right from the start the doctor said it was not a Lazy eye or a slight turn...The whole of my right eye used to dissappear, so it was far from slight hehe...My mother and my kindegarten teacher found it a little disconcerting to tell the truth...After the second visit my mother was told the diagnosis...

The doctor told my mother and father that I had a rare disorder called Duane Syndrome... The definition of this syndrome is it is a congenital eye disorder of the eye movements...I have cut and pasted the below information from emedicine.com and will supply the link below as it very hard to explain without actually cutting and pasting the whole thing...

DS is a miswiring of the eye muscles that causes some eye muscles to contract when they should not and other eye muscles not to contract when they should. People with DS have a limited and sometimes absent ability to move their eye outward toward the ear (ie, abduction), and in most cases, they have a limited ability to move the eye inward toward the nose (ie, adduction).

Often, when the eye moves toward the nose, the eyeball also pulls into the socket (ie, retraction), the eye opening narrows. In some cases, the eye moves upward or downward. Many patients with DS develop a habit of turning their face to maintain binocular vision and thus compensate for improper turning of the eyes. In about 80% of all cases of DS, only 1 eye is affected, most often the left eye. However, in some cases, both eyes are affected; usually, 1 eye is affected more than the other.

After the optomologist diagnosed me it was decicded I would have an operation to correct this as best they could other wise I would stop using my right eye all together and eventually the brain would stop sending messages to this eye there fore i would lose my sight as well in this eye...I am not too sure of the treatments now for this condition but I know in 1978 the option we had was an operation...

I was sent to hospital and the operations was done...After the eye patch came off all I remember was how fantastic it was to not see double anymore...I went back to school and in stead of having a huge tilt to my head I had  a slight tilt to my head which is something that happens to alot of people with Duane Syndrome...

I had to do exercises when I was younger to build up the strength of this eye and it is not fully normal looking as you can see from the photos but I do have 20/20 vision....Without this operation they did not think I would...

Occassionally I will still walk into a pole or bump into people because without actually turning my head I dont have full peripheral vision...But as I have gotten older I have learnt to deal with this and learnt to turn my head...

This is a fairly rare disorder but one I think that should be looked at on a parenting site and this was my reasoning on writing about this...I check all my childerns eyes  but thankfully none of them have this but still it is no guarantee that their children will not...It is know to skip generations...This is my experience with Duane's Syndrome...Thanks for taking the time to read about this and if it interests you please take a look at the link below...

Have a great day
Cheers
Angie
 
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halston
September 8th | halston
Re: Lazy eye?...Slight turn?...My experience with Duane Syndrome...

My 16 year old son has this in both eyes.   He started driving this past summer.  I'm really worried about his ability to do this since we've had too many close calls with him coming too close to things on either side of the car and he has already hit my mailbox once...  I'm going to meet with his eye doctor later this week to get her advice.   I don't know if it is a matter of him just needing more practice or if this is going to be something he just can't safely do....  Anyone have any experience with this?  Are there any devices that can be added to the car to help him that anyone knows of?   We're holding off letting him get his license until we feel confident he can be a safe driver.



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Brad82
March 2008 | Brad82
Re: Lazy eye?...Slight turn?...My experience with Duane Syndrome...


Hello my name is Brad im a 26 year old that was born with Duanes syndrome in my left eye.

I have had no problem with vision no double visioni  just cant look to the left with my left eye.

I learnt young not to look at people to my left and to always sit on the left of people so when i look at them it is not obvious. Peole have no idea i have a eye problem unless i tell them about it.

My eye is a little blurry to look out but my right eye makes up for this. I have no problem driving or anything like that in fact i race cars and am one of the better drivers lol.

just thought i would let you know it not that bad

regards Brad

pursuit_250@hotmail.com



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Brad82
March 2008 | Brad82
Re: Lazy eye?...Slight turn?...My experience with Duane Syndrome...

 

Hello my name is Brad im a 26 year old that was born with Duanes syndrome in my left eye.

I have had no problem with vision no double visioni  just cant look to the left with my left eye.

I learnt young not to look at people to my left and to always sit on the left of people so when i look at them it is not obvious. Peole have no idea i have a eye problem unless i tell them about it.

My eye is a little blurry to look out but my right eye makes up for this. I have no problem driving or anything like that in fact i race cars and am one of the better drivers lol.

just thought i would let you know it not that bad

regards Brad

pursuit_250@hotmail.com



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TheParentCoach
5.00 (Excellent) | March 2007 | TheParentCoach
Girls with Duane's
Spot on article , I've only known one child with Duane's. It is so good to hear how successful the surgery was. I know that in nursery the teacher worked with the health professionals to make sure we made life in the classroom a little easier for the little girl. It's interesting that it'a much more common in girls but no-one seems to know why.


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Amanda-D
5.00 (Excellent) | March 2007 | Amanda-D
Duane's Syndrome

My youngest of 2 daughters has recently been diagnosed with Duane's syndrome.  She is only 14 months old.  Thank you for sharing as I have never come across anyone else who has or has known someone with this syndrome.  I wonder how this will effect her as she grows, and how much her vision will be effected.  If you have any ideas of ways I can help her as a Mum, or of what else I should look out for, please let me know.  Her ophthalmologist is monitoring her and the severity of the condition.  Could there be any other symptoms of this syndrome I should look out for?  Not may people are aware of this condition and childcare workers will often comment "she has a turned eye - she needs surgery asap and exercises!"  However, her ophthalmologist has said that surgery and exercises will not help her.  Thanks again for sharing.

Regards,

Amanda



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kseers
5.00 (Excellent) | March 2007 | kseers
Interesting
Thanks for sharing this for our education!


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exquisite-flower
5.00 (Excellent) | February 2007 | exquisite-flower
fascinating
Thank you for sharing Angie, this is incrediblely interesting.  The link is just loading for me as I write this,...
Peace
EF.x 


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Kellzacar
5.00 (Excellent) | February 2007 | Kellzacar
Duane Syndrome

Thanks for teling your story . . . That must of been so hard at a young age.

Until now i had never heard of Duane Syndrome. Thanks for sharing and taching me something new . . .  Danehsa has a lttle boy in her class whose eyes seem very similar to this. He also does weird tricks with hes eyes (thanks for that image deb). At least now i may be about to give Danesha a few idea's about her new little friend.

Cheers Alana



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Wendigo
5.00 (Excellent) | February 2007 | Wendigo
My partner has a lazy eye.

And it's only since knowing me he has agreed to even consider wearing glasses to correct it.  Fortunately it isn't too bad.

My son has an eye that occassionally turns inward, but he often does it deliberately, so much so it has almost become a habit.  Though I have been wondering if any of it may be uncontrolled.  I've been meanign to get him an appointment to get it seen to just to be sure, now after reading this I have been reminded to get off my butt and do it.  Thanks.



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lexiw
5.00 (Excellent) | February 2007 | lexiw
great article angie

I am glad everything turned out ok for you.

 Lexi xxx



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tracey
5.00 (Excellent) | February 2007 | tracey
hmmm
Interesting. I think it's great that you brought that to Minti. I'm going to reread the article. Bummer you and your mom had to go through all of that when you were young!


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breannababy
5.00 (Excellent) | February 2007 | breannababy
thank-you
Angie for this informative article,I only ever knew about lazy eyes.(I have lazy self syndrome LOL) good work mwah hugs Merle


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blackwidowkate
5.00 (Excellent) | February 2007 | blackwidowkate
It's really cool
Hi
It is really cool when she is drunk or tired and the eye gets a mind of its own........
She loves to make the eye disappear around the corner lol.......
And here I was thinking she ran into poles  because she was clumsy lol...........
Well thats what she tells me.......I know its the effect of the alcohol we consumed the night before lol.....
Luv Deb


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