minti, powered by parents Powered by Parents
First Visit?     Register     Login
 

This site gets better with user participation. Please participate... Some of the main things you can do is rate this advice, add comments to this advice, add links to and from this advice, and/or write your own advice.

  email  print
  report   
Like this topic?
Write Advice
Add to Favorites
Advice that links to this one
ADVICE RATING
 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) 4.85 (Highly recommend) from 15 votes (309 Visits)

coeliac disease - I grew up with it

peachynowamum by peachynowamum Talking(March 2007) (rank 313th)
Growing up I was always a sickly child and extremely underweight.... people accused me of be annorexic or belimic and some people thought we were poverty stricken and could not afford to eat because i was just that thin...

I got bullied at school by other kids (They would call me anna wich if you have not worked out is short for annorexic).... And I had trouble making friends and spent a lot of time hiding in the school library...... I also spent a lot of time going in and out of hospital...
By the time I was 18 I had a list of 21 different this wrong with my health at the time time ranging from UTIs to Brochitus to fibromyalgia to Q-fever even.... I was pretty miserable and had enough... I went to the doctors and said, "I want to know what wrong with my immune system, why I am under weight and why i am always sick... Enough is enough ".
That was the beginning of  a  healthier life for me because one of the many tests that i had came up positive for coeliac disease (which is confirmed by endoscopy).... A condition that is usually inherited and can be controlled by diet.... its 3 years on and i have yet to be admitted into the hospital with another illness unless you count giving birth... LOL

Now you know my story what is coeliac disease?

Coeliac (pronounced seel-ee-ak) Disease is a permanent intestinal intolerance to gluten... And is often an inherited condition...

The best way I find to describe how it affects you is to get you to imagine your small intestine is like velvet with furry little finger sticking..... this velvet like lining is what absorbs all those wonderful nutrients from your food, Nutrients that are vital to your health and development both mental and physical... However what happens to a coeliac when they eat gluten that intestinal lining is worn away making smooth and like glass and very little sometime none of the nutrients from your food can be absorbed.... And as you can imagine this can have devastating effects on your health...

What are the symptoms of coeliac disease?

These are the most common symptoms and can affect at any age: ( Taken from http://www.coeliac.org.au/symptoms-diagnosis-symptoms.htm )

  • Fatigue, weakness and lethargy
  • Anaemia - the anaemia will either not respond to treatment or will recur after treatment (iron therapy) until the correct diagnosis is made and a gluten free diet is begun
  • Flatulence and abdominal distention
  • Diarrhoea - this may begin at any age and is often present for years prior to diagnosis
  • Constipation - some are likely to experience constipation rather than diarrhoea although a number of people do not experience either and some experience both
  • Cramping and bloating
  • Nausea and vomiting
  • Weight loss - although many do not lose weight and some can even put on weight
  • Poor immune system

 Less common in adults


  • Easy bruising of the skin
  • Ulcerations and/or swelling of mouth and tongue
  • Miscarriages and infertility
  • Low calcium levels with muscle spasms
  • B12, A, D, E and K vitamin deficiency
  • Skin rashes such as dermatitis herpetiformis
  • Dental defects
  • Altered mental alertness
  • Bone and joint pains

 Common in children

Onset of symptoms can occur at any age after the introduction of gluten. 

  • Abdominal distention, pain and flatulence
  • Nausea and vomiting
  • Diarrhoea or constipation
  • Large, bulky, foul stools
  • Poor weight gain
  • Weight loss in older children
  • Delayed growth or delayed puberty
  • Tiredness
  • Anaemia
  • Irritability
  • problems interacting with other children
  • delayed mental development (not very common)

Can coeliac disease be cured?

Unfortunately No but it can be managed with a strict Gluten Free diet... and any damage done to the intestinal lining can usually be reversedif the diet is strictly adhered to.....
Any contributed content above is the subjective opinion of that member or external author, and not of Minti.com Pty Ltd. If you are searching for health related advice we strongly suggest you seek professional medical support. View our Terms of Service for more details.

Related Content:

Bookmarks:

ADVICE RATING
 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) 4.85 (Highly recommend) from 15 votes
Report

Thankyou for your vote (you can change your vote at any time). Please leave some helpful comments about this advice using the box below.

ExcellentExcellentExcellentExcellentExcellent
GoodGoodGoodGoodGood
AverageAverageAverageAverageAverage
PoorPoorPoorPoorPoor
Very PoorVery PoorVery PoorVery PoorVery Poor

Voting help


 
Add a comment on this article.

 

llmunchkin
July 5th | llmunchkin
Re: coeliac disease - I grew up with it

Great advice, it is so much more meaningful as it is your personal story, along with some facts.  The site states that it affects 1/100 people; it also affects their family and friends of people with Coeliac disease to be educated and aware of.



Reply Reply Report
monyq83
5.00 (Excellent) | March 2007 | monyq83
wow great advice

i have heard this disease mentioned alot, but never knew exactly what it was. thanks for informing us peachy.



Reply Reply Report
monarogirl
5.00 (Excellent) | March 2007 | monarogirl
Know exactly what you are talking about
Mum has been diagnosed with this since she was about 41 or 42. So far my sister and I don't have it. Fingers crossed we won't!


Reply Reply Report
      peachynowamum
5.00 (Excellent) | March 2007 | peachynowamum
Know exactly what you are talking about
so you probably noticed it was a big life style change then....
trust me i feel for your mum....
I still struggle with following the diet lol


Reply Reply Report
           monarogirl
5.00 (Excellent) | March 2007 | monarogirl
Know exactly what you are talking about
Yeah, she gets pretty sick of reading all the ingredients before buying something! But she is 56 now so has been living this way for awhile. Also she has noticed that if flour is listed about 6th or 7th (roughly) down the list of ingredients she is usually ok with it. Just so long as it isn't the main first few. Hope that makes sense!


Reply Reply Report
                peachynowamum
5.00 (Excellent) | March 2007 | peachynowamum
Know exactly what you are talking about
oh it makes sense thats because ingredients are listed in order of what the contain most of...


Reply Reply Report

Know someone who would like this site? Refer a friend