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Polycystic Ovarian Syndrome (PCOS

Anonymous Author (June 2007)

 

At the age of 21 when I was newly engaged and happy, a trip to the Doctors changed my life….At that time I had never worried about the fact that I barely had periods…. I never worried about not conceiving or losing my thick hair….

I never worried about problems with blood pressure or how a cyst would feel when it exploded in my abdomen… I was young and nothing could hurt me… I had gone to my Gp and he asked me about my last pap smear and then he discovered that I was lucky to have a period every 4 mths…. He said that was abnormal and then we talked about my rapidly thinning hair….

So I was off to an ultrasound and to a skin specialist (dermatologist)…. The skin specialist took a couple of samples of my scalp…she took a core sample and a horizontal sliver that she had analyzed…. These came back saying that I had a high level of androgens (male hormones and as a result I had male pattern baldness… Being only 21 and female my whole world crumbles cause suddenly I feel like I was meant to be a man. I was broken…. But it wasn’t the end cause I still had an ultrasound to get through. The results for the ultrasound showed a right ovary that was 4 times larger than it should be and a left that was also swollen… the ovaries were filled with little bubbles or what they all called cysts…To me cysts meant cancer… and as I had gone without my mum I didn’t have anyone to turn too… The specialist then told me I would find it impossible to get pregnant without help. That was the nail on the coffin for me…. Everything that made me female had been ripped away or so it felt.

The Doctor later explained to me my results meant that I had Polycystic ovarian syndrome, (also called Stein–Leventhal syndrome). It is a hormone problem that means little cysts (or old eggs stay locked in the ovaries like a little chain of pearls) …. Most people find out about this condition when they are in their late teens up until they go through menopause and 10% of women do have PCOS…The symptoms include

  • Acne.
  • Weight gain and have trouble losing weight.
  • Male pattern baldness or thinning hair on the scalp.
  • Hair growth on the face, back, or chest.
  • High blood sugar > hyperglycaemia
  • No periods or irregular periods.
  • Trouble getting pregnant.
  • Repeat miscarriages
  • Gestational Diabetes during pregnancy.
  • Dandruff
  • Oily skin
  • High cholesterol

Once I found out about my condition I was affected emotionally…I ended my engagement due to feelings of inadequacy and I went thru severe depression (hmm what do I mean with went. I’m still there). I was told that I don’t release an egg every month (actually back then I was releasing maybe 3 a year and right now I release none at all). It took 3 years for me to become pregnant with my son and my Doctor couldn’t believe it when we actually got the results (I was over 3 months before I went to the GP cause I thought I had a virus)…. I almost went into premature labour, got gest diabetes, had high blood pressure and went off work at 30 weeks due to illness. Being pregnant wasn’t fun.

For some having a child will help with other pregnancies…After having my first son I was able to fall pregnant with my daughter quicker as my body was cleared out for a while … I have a friend who had to have a D&C to help with falling pregnant the second time…. Every woman is different in what symptoms they have. I have a friend, who has excess hair, thyroid problems, and weight gain with her PCOS. I have high androgen, dandruff, hair growth on my chest, no periods, etc The one symptom that is a definite though With PCOS is the lack of  or irregular periods. Because we don’t release eggs every month other problems can occur such as heavy menstrual bleeding, endometrial hyperplasia and endometrial, breast or uterine cancer. Research says there is a higher risk for heart attack and cardiac disease.

There is no one test that can be run that’s says you have PCOS… It’s decided after a you submit to a physical exam, ultrasound, and blood tests. It is treated by exercise, and diet changes. If you want to get pregnant Doctors will prescribe medications to encourage ovulation. If you don’t want to get pregnant then the birth control pill helps keep your body working the best way it can…. For me this is a No No as my body doesn't cope with the pill at all. To help with my hair loss I was prescribed Aldactone (which i stopped taking as it doesn't seem to work...my hair follicles have closed up now)… At present I am having problems like severe bloating and abdomen pain. I have a lot of friends ask how far I am along when they haven’t seen me for a while… It does damage to my self esteem and at times I hate dressing up…. 

If you are at all worried about any of these symptoms then you need to see a doctor to discuss your concerns....

 

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joburkey
November 25th | joburkey
Re: Polycystic Ovarian Syndrome (PCOS

This is a fantastic article, i have friends who have been diagnosed and there is still hope for them, thank you



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DEBBIE-69
November 21st | DEBBIE-69
Re: Polycystic Ovarian Syndrome (PCOS

Thank you for the information that you have given. My 16 year old has been told by her GP that she has it is there any way we can get more information.



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drnmthompson
November 2nd | drnmthompson
Re: Polycystic Ovarian Syndrome (PCOS

Hi there i to have PCOS i had my first son when i was 17years old with no problems at all then two years later i met my soul mate and got married we started trying to fall pregnant not long after, it took us one year to fall then we lost the baby at 12 weeks soon after my periods stopped  i had none for 1 1/2 years i felt so horrible i was bloated moody i lost intrest in sex i had hair turning up where it wasn't suppose to be, my husband and i were reffered to gyno and the doctor ran tests and told me i had PCOS i was devastated the doctor told us that we could go on the pill but we wanted more kids so he put me on CLOMID to make me ovulate and monitor my temp this took three months to acctually fall pregnant we were so happy then we got to 18 weeks and we ended up in hospital i found out that i got an infection and was fully dialated our baby girl was born two weeks later she had no hopeof surviving, seven months later back on clomid we fell pregnant again our daughter was born at 31 weeks since the we have had 2 more kids a boy and a girl without any medication, i was once told by a doctor (that had no real clue about pcos) that i woul have to be annorexic to have kid more fool her i lost some wheight which was very hard to do as we all know that your metabolism is  really slow with pcos but it can be done it  will always be a struggle with pcos but there is hope out there you have to believein that,thank you.



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baycie
October 27th | baycie
Re: Polycystic Ovarian Syndrome (PCOS

My heart goes out to you, thank you for sharing.



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katierose
August 17th | katierose
Re: Polycystic Ovarian Syndrome (PCOS

Thank you! I too have had many problems.......I fell pregnant very easily, ( I didn't know at thath stage there was anything wrong!) but since then have gone down hill! Hair thinning on head, hair sprouting everywhere else! So much pain in my tummy! Have just had a third round of ultrasounds.... am off for CT scan in a few days. Doc is not entirely sure what they are seeing...Right ovary full of cysts, left....well took 2 goes to find it even with internal u/s...is full of white bubbles...am hoping for best but doc thinks it is not very good news! Fingers crossed! at this stage, would be happy if only PCOS!!! It is an awful thing to have as there is not a great deal that can be done! Hormones and insulin go astray. Pain. Pain. Pain! Mood swings. Keep your chin up and I wish you all the very best. There is hope if you do want to have children! Nothing is impossible! Once I know exactly what is happening with my ovaries and if all is OK, I will start trying for bambino number 2! If we are lucky, it will be wonderful, if not, I am happy to count my blessings! Thanks for your article, it is really informative!



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emwa
May 2008 | emwa
Re: Polycystic Ovarian Syndrome (PCOS

hi im 20 now and just found out i have polycystic ovaries, the way i feel about it is just like you, ive only been trying for a child for 6months with no luck, i havent had a period for 2years and want to know if you need to have your periods before you could fall pregant, i had my period everyday for 1 whole year when i first got them and after that ive had them like 7 times and then they never came back so thats why i was wondering if my periods need to cum back before i can ovulate, im so upset that i havent got a good chance to fall pregant with having pcos



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monyq83
March 2008 | monyq83
Re: Polycystic Ovarian Syndrome (PCOS

wow thanks, that answered alot of questions for me, and i think i better be off to a trip to the doctors...



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janicepovey
5.00 (Excellent) | August 2007 | janicepovey
Re: Polycystic Ovarian Syndrome (PCOS

Well done, for being brave enough to share your story with us, i sincerely wish you all the very best for your future.

Cheers Janice



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anon
5.00 (Excellent) | August 2007 | anon
Re: Polycystic Ovarian Syndrome (PCOS
thanks for sharing. You have had such a rough trot and must be a truely strong person mentally to over come all of your difficulties. My hat goes off to you. I am lucky in the fact that my symptoms aren't as severe and I had a reletively easy pregnancy. Some of my symptoms include. High levels of androgens, wieght problems, lack of mensturation, excessive hair (on my chest too)  and I can not go on the pill either. I also have really bad cramping in the abdomen and pain during intercourse (sometimes) and really severe mood swings. My poor partner, I never really thought how tough he must have it til just now.


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kseers
5.00 (Excellent) | June 2007 | kseers
Re: Polycystic Ovarian Syndrome (PCOS
Hi!  What a rough ride you've had. 

After I was diagnosed with insulin resistance they were concerned about PCOS too as I gather they often go hand in hand.  Fortunately they decided I don;t (though there is something hormonally squiffy going on).  Anyway I was glad I found out all about it as my best friend has PCOS too.  After she was diagnosed she was told she could never have children - well, after many years, she is now 4 months pregnant with her first child - YAY!  I hope she has an easier road than you've had, but thanks for sharing and I hope things improve for you!


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cookclan
5.00 (Excellent) | June 2007 | cookclan
Re: Polycystic Ovarian Syndrome (PCOS
Hi Paula Wow...This is a fantstic article thanks for sharing...
Mwah
Angie


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nell18-3
5.00 (Excellent) | June 2007 | nell18-3
Re: Polycystic Ovarian Syndrome (PCOS

Paula I have even more regard for you than before after reading this, I knew you were a strong woman but you really have had to overcome heaps

xxx



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Kellzacar
5.00 (Excellent) | June 2007 | Kellzacar
Re: Polycystic Ovarian Syndrome (PCOS
Hi mate,

Thanks for sharing  . . This is a great article . . .

Cheers Kellz


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Libby24
5.00 (Excellent) | June 2007 | Libby24
Re: Polycystic Ovarian Syndrome (PCOS
Hugs. i know how you feel.
I was told at 13 that i was like my mother, aunty and nanna and that i would never have kids and if i fell pregnant it would pretty much be a miricle. When i met my hubby when i was 17 i fell in love with him imeadeately and then thought whats the piont cant have kids, but we discussed it and thought it was fine, we could save up and do our life stuff and then adopt. it was after i had Charlie and my uterus colopsed and i had that fixed and a D&C that the doc found all the cysts on my ovaries. both of the are huge and covered. he said he lazered as much as he could in the time he had but couldnt do a lot. he then said i dont think you will ever have a chance to have any more kids and you really need a hystroectomy asap, but due to my age 23 at that time i had no chance in hell getting someone to perform that, even now no one will. I am taking the pill to stop my period every month (get it every 3 instead) and have to take another tablet when i an menistrating as the endmerosis is so server that i am cramping so bad that i am pale. i also lose a lot of blood too. but am not aneamic.

all i want is the pain to stop, that is it.

Thank you for sharing this with us as a lot of women think what their bodies are doing is normal, cause it is to them, but it isnt really. I hope that this helps other women out there seek help.

good luck and i hope you can come out of your depression

Liz


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hermy
5.00 (Excellent) | June 2007 | hermy
Re: Polycystic Ovarian Syndrome (PCOS
thanks for sharing this with us......it's good to have the symptoms down, that way something can be done.....how many people are out there not realizing this is what is happening to their bodies.....great advice...well done....regards Sandra xxx


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