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Sophie in splints
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Hip Disorder

blossom24 by blossom24 Speaking(June 2007) (rank 500+)

My daughter Sophie was born with Developmental Hip Dysplasia. I had a traumatic birth/delivery with Sophie as I was induced, and I just wasn't contracting. Sophie is my first child. I was in hospital for 5 days. When she was born all I could ask the doctors & midwives was

is she healthy - as every mother would do. Yes, they said she was just perfect. I was so happy. It was on her third day in this world that my happiness dissapeared for a short while. A doctor came into the room and checked Sophie's hips as he said that when she was born they noticed she had clicky hips. I had never heard of any of this. He told me that they seemed fine to him, but to go get an ultrasound just in case. Later on that day I went and did that. The next day I was to go down to the physio at the WCH - mind you this was Sophie's fourth day in the world, and I was still trying to cope with the joy and emotions that come with having a baby, plus the sleepless nights in a hospital ward, plus breastfeeding. I went into the room with the physio who showed me a brace that Sophie would be wearing for the next ten weeks. I didn't know what to say. Nobody had told me that she would be wearing a brace for the first ten weeks of her life. I tried really hard to keep the tears back, but I just couldn't do it. I broke down into tears for what felt like a life time. The physio wasn't surprised by the tears, she was more surprised by the fact that nobody had actually spoken to me about what causes hip disorder in newborns or the fact that Sophie even had Dislocated Hips. It was an extremely emotional day for myself and my partner, Chris.

Sophie was to wear splints on her legs for the first ten weeks of her life. I had to adjust the position in which I breast fed Sophie, and we were unable to give her a bath until the splints were removed ten weeks later. It was the middle of Summer too. I was devasted the most about the fact that I was told this disorder can prevent them from walking in life. There was a very small chance of this happening as babies are treated straight away these days! So it was back and forth to the hospital for 10 weeks to adjust the splints as she grew. It was the middle of summer - 40 degrees!! - and poor Sophie wasn't even allowed to cool down in a nice bath or swimming pool!

The splints came off at ten weeks and it was the most exciting day of my life with Sophie! We drove straight home and all three of us got straight in the bath. It was such a great experience to have a bath with my first child after being deprived of it for 10 weeks. I know it sounds like such a silly thing, but it was a special moment!

Now 18 months on Sophie is running around everywhere. We went back to the hospital at 6months, and one year to have xrays and we still need to go back when she turns 2 just to make sure her hips are developing properly. I look back at it all now and I realise that it wasn't such a bad experience as I felt it was at the time. There are many more serious problems with babies/children and I'm very grateful for the little girl I gave birth to. I would rather go through all those emotions early on in her life and know that she will be able to walk which is what she is doing now.

I've written this article as it isn't something parents talk about much on this website. If there are any parents out there who are going through this now or who find out their baby has this condition when they are born please feel free to write to me. I will be here for anyone who wants any advice or to answer any questions as I didn't have any parents to talk to about this when Sophie was diagnosed!

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Frogie
5.00 (Excellent) | October 2007 | Frogie
Re: Hip Disorder

Hello...

Your advice is very well writen... I just added a little to Chams.... But if you don't mind i'd like to share a quick version of my story....

I to was born with 'Congenital Hip' as it was known 31 years ago... They didn't not find mine until i was much older than your precious daughter, I was almost 1yr... I ended up having to have a full bone graph do on my left hip... then had the brace like your sophie for a few months and then had 12 months of plaster... starting from my arm pits down both my legs to the tips of my toes (after a while they stoped it at the ankles)... It use to be called 'Frog Plaster'... kinda really fits my minti user name....

I today have got no side affects from my surgery, other than a scar, longer than my c-section scar.. oh and when i lay on my back you can see the bone structure is different to my right.... but i walk fine without any limp, i seem to have no problems with it at the moment (touch wood) other than a little pain in the colder weather.... I did ballroom dancing for over 20 years and it has never affected my hips. and i have carried three babies.... I have to admit i didn't naturally birth them but not because of my hip... all my babies didn't have 'clicky hips'...

My cousins new baby has just found to have 'Clicky hips' and she has been in a brace for the past 2 months and now has to have plaster....

Reading all your comments, i have noticed no others have had to have a bone graph... yet i thought that was the norm...

Anyway, Once again you wrote a great piece, be proud of your little girl, and be proud of your self, it would be a hard thing to take in...

Take Care Always... Warmest Regards Frogie xox



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Jessgore
5.00 (Excellent) | October 2007 | Jessgore
Re: Hip Disorder
Nice article, glad that you can look back at it and realize that it was not as horrible experience as you thought it had been, but I can imagine the emotions at the beginning...

What actually causes this to happen? Very glad they caught it in time...
xxx


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lexiw
5.00 (Excellent) | August 2007 | lexiw
Re: Hip Disorder

I have heard of this but didn't know details and had never heard a personal story thank you for sharing

 Lexi xxx



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Sukoso
5.00 (Excellent) | August 2007 | Sukoso
Re: Hip Disorder

www.minti.com/image/d-600-600/37120/

Just thought I share a photo of my Sophie having fun despite her restrictions in her rhino brace!

 



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Sukoso
5.00 (Excellent) | August 2007 | Sukoso
Re: Hip Disorder

Hi.  I'm new on the site and just did a search on hips as my daughter also named SOPHIE has hip dysplacia!  She has been in a rhino brace now for almost 4 months since she was 8 months old and hopefully she only has another 2 more weeks til we head back to the orthopaedic surgeon where fingers crossed we will have great news that she will be rid of her brace!  The appointment is actually the day of Sophie's first birthday - so it would be the best birthday present ever to hear him say "she doesn't have to wear it anymore!". 

I got all teary when I read your article cause I could so relate.  It's sad when they told you at birth that she may not walk ... not good to hear when you've just had a precious baby.  My surgeon acutally said to me that some people go through life and don't even know that they have it til later on in life.  So it's sad that they told you that you're baby would never walk. 

Like you, I spent the first 2 days in tears - and then after that occasionally only burst into tears!  I use to cry constantly.  Sophie was first diagonised at 4 months of age (as her leg fat folds were different) so like your Sophie she may have had it from birth - but at the 4mth consultation  he said it could rectify itself so he wouldn't place her in anything.  But at 8 months of age (the age where they begin to want to move) he said she would need to be placed in a brace 20 hours a day (I'm all teary as I write this thinking back about it all).  I was so furious!  More for the fact that she could have had the brace on 4 months ago when she wasn't doing anything ... now when she should be at the age of crawling, moving etc - she would be restricted to either sitting or lying on her back 20 hours a day. 

My little Sophie however was a trooper and adjusted way better to it than her mummy ;)  The first week was hard sleeping - but she has since learnt to bum scoot in it, sit, and reach out to objects!  It's become part of our everyday.  It's great to hear from you that your little girl Sophie is running jumping playing like all the other kids. 

Now that I know she is getting it off (hopefully) in 2 weeks time I'm really nervous (silly I know!).  Anyway, thanks for sharing your story.  The name Sophie should mean determination I reckon (look at Sophie Delisio sp??).  All the best, Susan (x)



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Ngairi
5.00 (Excellent) | June 2007 | Ngairi
Re: Hip Disorder

Great article. My dad was born with dislocated hip and was in plaster for 3 months! I have seen some photos of it and it looked bad for him.

He ended up with one leg shorter than the other and is now at 64 having trouble walking too far.

But with the advances they have made these days I am sure that Sophie shouldn't have any troubles later on.

Leisa



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crystalmoon
5.00 (Excellent) | June 2007 | crystalmoon
Re: Hip Disorder
Bree had a clicky hip one side at her 6 wk check up,but they never told me whether/or how serious it could be??? thanks for your article Hugs Crystal xx


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Kellzacar
5.00 (Excellent) | June 2007 | Kellzacar
Re: Hip Disorder
Hi there,

Thank you for your story . . . I have a relative who son was recently diagnosed with this and now i understand it more . . .

Thank you Kellz


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mum2four
5.00 (Excellent) | June 2007 | mum2four
Re: Hip Disorder

HI, great article and yes it is not something that most parents would  not  know   about.Iwas born with congenital hip and I think that may be what is was called 35 yrs ago.I was diagnosed at 7 months as it was missed back then when I was born.I first went into hospital 4 hrs away from my parents home town and was hospitalized for about 3 months in traction.As my parents had another 3 children I was left in the care of the hospital nurses and doctors ,my mother would come every few weeks to see me.After my traction in was then placed in plaster from the waste down to my ankles with a bar between my legs ,which made it very hard to put nappies on.I was in plaster for 6 months and was alowd home after a few months while still in my plaster,My mother has told me that I used to drag myseff around as I could not crawl or walk of course.I eventually got my plaster off and had to learn to walk after some months i ran free.

I was told that my original hip was fixed but unfortunatly I developed a degenative disease  in my left hip and now i am in  need of a total hip replacement  at 35.Something I am not looking forward to with 4 children.I also have a friend that also had the same thing as me but she was treated with  2   surrgery but she now has one leg much shorter the the other and walk with a temmible limp like waddle much like me.She also has a 8 month old daughter who has spent 5 months in the splint much like the one your Sophie had.It looks like she may be fine as the last time she went for her check up it looks like it has been repaired.It is funny as I was growing up I never once new anybody that also suffered the same as me ,now as an adult I am able to learn of others experience.I have never been able to cross my legs or do many activities becase of my conditions and if I did too much activity I would be screaming in pain.I have written all this as we are very lucky now that they are more aware of this condition and know how to treat it if it is picked up at birth.Did you also know that this condition is also more common in girls my daughter was checked a couple of times as a baby as I had the condition but luckily she was fine.I was going to put a picture of me as a baby with my plaster on but was unable to.

                                                            Cham

                            



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      blossom24
5.00 (Excellent) | June 2007 | blossom24
Re: Hip Disorder

Hi Cham! Thanks for your beautiful reply and your lovely story too.  If only they knew back then what we know now!!! Yes, I did know that it was more common in baby girls. It is also more common in babies of women under the age of 25 which is a rather interesting fact! 1 in 5 girls are born with dislocated hips so I believe. It is great that your daughter didn't have it, but apparently it isn't hereditory. I've seen some websites of mothers who've written stories about this today. Over in America they still need to put the child in a cast to help align the hips!!! We are very lucky in our country!

Amy



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      Frogie
October 2007 | Frogie
Re: Hip Disorder

Hi Cham...

I'm 32 and was born with 'Congenital Hip' my left side...

Although i have had no trouble with mine in all the years, other than a little ache in the colder weather... but i don't have a limp, I did ballromm dancing for over 20 of my years....

Take Care xox



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