Thankyou ,i guess you never know how you will react unless it happens to you.

i know exactly how u felt at the time, i felt the same when my daughter had a seizure 3months ago, from a fever. i still cant get it out of my head how she looked, how i felt, after the first time, i was looking at her differently every 2 mins..........i really really hope no parent ever has to go through this,

i hope your son is better now and thanks for sharing this with us

ohh dear, so sorry ur little one went through this..... thank u for ur advice here

naomi xx

i am so sorry that  you and you're child had to go through that .It must have been tough for you and scarry.  i have two girls and i am so glad they are ok. When i was a child i had seizures to so i know how scarry they can be even though it was a long time ago i can still remember them and what my mum went through just to get the doctors to diagnose me with epilepsy.  My heart goes out to you both.

My oldest daughter has epilepsy and I can relate to how scared you get when they have a seizure, because most of her seizures are at night I would wake at the slightest sound, I have woken up on the way to her room to check on her before! You go through such emotions! It is easy to feel guilty, I think it comes from a mums need to protect her children, then like you said you cant do anything at the time of the seizure. I found out as much info as I could about her seizures, hoping this would help me cope with them better. Good luck I hope they are few and far between.

wow hearing this just confirms how many strong women are out there my partners sisters child suffered sever fits from birth i think and they would get worse its unfortunate for her son because his brain has been affected. she is amazing and so are u thankyou for ur story.

My then 5 month old started having seizures, he had 8 in 8 weeks. It was horrible. Two of them were straight after a bath so I refussed to give him a bath for months, I still prefer to make my husband do it.

My son went onto Tegretol and hasn't had another since. We are starting to take him off the medication next month and I'm a bit apprehensive that he'll have another seizure, but I guess we have to try.

Your tips are what I was told too except I was told I could hold his hand gently and talk to him. I read about an adult who could hear his wife talking to him during his seizures.

my son did the same thing having febral convultions because of his temps, it has happened twice and the doctors thank god said as he gets older his body will deal with fever more effectivley, i felt the same way not wanting him to even sleep in his own crib instead i had him sleep in bed with me and my partner, personally my anxiety faded and i hope yours does too just know that the "what ifs" will slowly go away with time.

wishing your son all the health in the world!!

My 15 year old son had a seizure a few months ago, on his way home from school, while waiting to change buses. I didnt see it but his brother did. My poor son got up after  the seizure couldnt remember what had happened, with blood all over his clothing, as he fell  back and hit his head on the kerb.  He thought he had been attacked and robbed. Ended up with 9 stitches. He has never had a seizure before this,

It is something that really freaks you out and shakes you to the core. and  i didnt even witness it. I wont let him swim alone anymore and I havnt let him travel out alone since that, not without one of his brothers and they have to have a mobile phone with them (which I only got for them after the seizure). Not sure if this is healthy though, I guess at some stage in his life he will have to be on his own at times, but I just keep thinking of the 'what ifs'' .

Hi Lisa,  I went throught the exact same feelings you experienced with your son. My son Nicholas had his first fit (febral convulsion) when he was 10 months old. I have never been so scared in my life. He has had 4 fits total all due to his temp rising to quickly because of an infection  ect. But after every fit he had, I was scared non stop of being alone with him, even when he fitted in the hosptal my mum was with me and she was the one holding him just after it happened as I was too frightened to go near him. I saw a councillor after and that helped me deal with it better, but it is reassuring to know I'm not the only one feeling scared to go near my child when something traumatic like that happens. Hope he is doing well now

Thank you for sharing this. It is good to be prepared.

Peace
EF.x

3 out 4 of my kids have had seizures and one is even on a breathing monitor now and everytime i have witnessed them having a seizure  i have been told by other people that i am the one keeping them calm and doing all the things i can do to help my kids (medically that is ) like putting in the recovery position and when my son stopped breathing  and going blue i jumped into action with cpr its like another part of me takes over but once the doctors and nurses start doing what they need to do then the shock hits me like a punch in the face it is excellent to hear your little one hasnt had one in a while hope all is well

i am going through this right now, My 20 month old had 3 seizures in the last 3 days.

I am scared to be alone with him and petrified he'll do it again. I can't stop tinking about it and I feel very teary.

I think it has affected my 6 year old daughter who witnessed it too.

After reading your post I havce decided to make an appointment with someone to get some advice.

Thank you for making me feel normal! :)

great advice

thanks for sharing

Thanks for sharing. One of my brother suffers from seizures, though I never saw him have one as I moved out of the house when he started suffering from them. I can't imagine seeing a child have a seizure...It would just terrify me.

Hey Lisa, Thanks for sharing your story.......it must be one of the hardest things to watch your child go through. I hope they find out why it's happening.

Hugs to you........Amanda