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 (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) (Highly recommend) 5.00 (Highly recommend) from 16 votes (121 Visits)

Childrens Seizures and your Feelings!

lisasmith140483 by lisasmith140483 Talking(July 2007) (rank 126th)
My son Joshua has Seizures every now and then and no body knows why he does it but he does, I remember the first time he had a seizure he had been sick and i had a newborn baby that had just gotten out of the hospital that day ( she had bronchiolitis and nearly died) Josh was standing in the kitchen i turned my back and heard a bang , thinking he had fallen over i turned to see my baby fitting on the ground i ran screaming and picked him up ( BAD IDEA BY THE WAY) and handed him to my mum i was hysterical i then grabbed the phone and ran outside.

I called the ambulance they asked if he was breathing but all he was doing was making loud grunting noises, the lady on the phone said the ambulance is on the way!!

I couldn't go inside i couldn't i don't know why but i waited for the ambulance to come i stayed outside while they looked him over and i reluctantly got in the ambulance with him as he was still unconcious , i was petified he was going to die.

When we got him to wake up a little bit he was un-responsive to pain and was just wanting to sleep, my mum arrived with my baby and i lost it, i couldn't go near him i couldn't look at him i couldn't touch him, i was scared of him, every time i looked at his face all i could see was him fitting.

the doctors had to sedate me and get me the social worker who explained to me that i wasn't  a bad mum for being scared of my child it just showed how much i loved him and that alot of mums have the same feeling after a major event!!

It took me 5 months to get over it every time he fell my heart would stop, every time he was quiet i would choke up i didn't want to be alone with him and i didn't want him out of my sight, about a week after i relaxed it happened again!!

What i am trying to say is that if there is anyone else out there who has had the same feelings after a seizure or a major event with their child and they feel guilty please don't, there is no right or wrong way to react, its the hardest thing in the world to see your child having a seizure as there is litereally nothing you can do for then until the seizure stops.

Make sure you surround yourself with people that love you and your child, ask to see a social worker or the chaplian and talk about how you feel, make sure you have breaks from your child as you can get a bit obsessed and take a CPR course it makes you feel alot better.

And please please don't be afraid to ask for help if you want someone to stay with you and your child for a while until you feel more confidant then ask!!

TIPS FOR SEIZURES

  • MAKE SURE THE ENVIRONMENT IS SAFE- REMOVE THINGS THEY COULD HURT THEIR HEAD ON
  • DO NOT TOUCH YOUR CHILD UNTIL THE SEIZURE STOPS
  • DO NOT PUT ANYTHING IN THEIR MOUTH- YOU CANNOT SWALLOW YOUR TOUNGUE IT IS IMPOSSIBLE
  • TIME THE SEIZURE
  • CALL THE AMBULANCE AND EXPLAIN TO THEM HOW YOUR CHILD LOOKS SO THEY KNOW WHAT KIND OF SEIZURE YOUR CHILD IS HAVING
  • WHEN THE SEIZURE STOPS PUT YOUR CHILD IN THE RECOVERY POSITION ON THEIR SIDE HEAD PROPPED UP AND TILTED BACK SLIGHTLY AND WAIT FOR THE AMBULANCE   
                                                    

 THANKS FOR LISTENING GUYS AND I HOPE YOU NEVER HAVE TO GO THROUGH IT!!

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JOSIEJO
February 23rd | JOSIEJO
Re: Childrens Seizures and your Feelings!

i am going through this right now, My 20 month old had 3 seizures in the last 3 days.

I am scared to be alone with him and petrified he'll do it again. I can't stop tinking about it and I feel very teary.

I think it has affected my 6 year old daughter who witnessed it too.

After reading your post I havce decided to make an appointment with someone to get some advice.

Thank you for making me feel normal! :)



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emmie
November 2007 | emmie
Re: Childrens Seizures and your Feelings!

great advice

thanks for sharing



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Izzy
5.00 (Excellent) | November 2007 | Izzy
Re: Childrens Seizures and your Feelings!

Thanks for sharing. One of my brother suffers from seizures, though I never saw him have one as I moved out of the house when he started suffering from them. I can't imagine seeing a child have a seizure...It would just terrify me.

 



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MumKim
November 2007 | MumKim
Re: Childrens Seizures and your Feelings!
Thanks for writing this. I have watched my husband have many seizures before his surgery. It is a scary thing to watch someone you love having a seizure but I I can't imagine what it would be like to watch your own child  have a seizure. I hope that they work out what is causing your childs seizures and find a way to stop them. Even if they can't stop them now, don't dispair. They couldn't stop my husband's seizures when he was a child but when he was 29 they had better medical knowledge and they operated and he has now been seizure free for nearly two years.


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ellamia
5.00 (Excellent) | November 2007 | ellamia
Re: Childrens Seizures and your Feelings!
Great advice oh that would be terrible and i hope you dont have to go through this ordeal anymore.

Love Kell


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emmysmum
5.00 (Excellent) | July 2007 | emmysmum
Re: Childrens Seizures and your Feelings!
my daughter has never had a fit and hopefully she never will!
I have epilepsy but my seizures aren't severe like you have described - thank goodness for that!
Great article and i hope you dont have to go through it too much - let alone at all anymore!
Cheers


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lisasmith140483
July 2007 | lisasmith140483
Re: Childrens Seizures and your Feelings!
thanks everyone, he hasnt had a fit for about 6 months now which is good, heres hoping it stays that way.
It is scary isnt it kellz , it kinda sticks in your mind and never goes away and the feeling of  being helpless doesnt go anywhere fast either...


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Kellzacar
5.00 (Excellent) | July 2007 | Kellzacar
Re: Childrens Seizures and your Feelings!
Hi there,

I remember the first time I watched my eldest have a seizure, I don't think I will ever forget it . . .

Great advice and thank you for sharing your story.

cheers Kellz


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cookclan
5.00 (Excellent) | July 2007 | cookclan
Re: Childrens Seizures and your Feelings!
Oh I do hope they soon find whats going on....Great piece of advice and well written...
Cheers
Angie


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hermy
5.00 (Excellent) | July 2007 | hermy
Re: Childrens Seizures and your Feelings!
it is a very scary thing......thanks for sharing your story......i hope they soon find out what is wrong.......great advice.....regards Sandra xxx


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lisasmith140483
July 2007 | lisasmith140483
Re: Childrens Seizures and your Feelings!
THANKS FOR ALL YOUR COMMENTS AND CONCERNS I APPREICIATE IT


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lonely28
5.00 (Excellent) | July 2007 | lonely28
Re: Childrens Seizures and your Feelings!
Thanks for sharing that with us all and I sincerly hope that they find out what is going on. All the best and keep us updated!!
Very well written,

take care,

fi xoxo


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mumof2b
5.00 (Excellent) | July 2007 | mumof2b
Re: Childrens Seizures and your Feelings!

Hey Lisa, Thanks for sharing your story.......it must be one of the hardest things to watch your child go through. I hope they find out why it's happening.

Hugs to you........Amanda



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cazza
5.00 (Excellent) | July 2007 | cazza
Re: Childrens Seizures and your Feelings!
yes it is scary and im glad that the social worker was there was so supportive for you lisa.... i have witnessed in the past with my nephews when they were little and had seizures, and the remarks my sister copped from others was horrendous...

 so thank you for sharing this with us....


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natelz1
5.00 (Excellent) | July 2007 | natelz1
Re: Childrens Seizures and your Feelings!
fantastic, it must have been so scary, i hope they find out whats wrong. My auntys son has seizures all the time, i mean he gets so bad he'll have multiple seizuresin a day, the first time i saw this i balled my eyes out as i was alone with him and didnt know what to do. It really is scary. *HUGS*


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