kadison's story

When i was 21 i had my first baby me and my husband was so happy and couldn't wait for the arrival of our first born i had the normal morning sickness and then when i hit the 28 weeks i came into very big problems i could not feel

my baby move and i was getting bigger and bigger  and i said to my husband there's something wrong  i then went into prem labour  my husband took me to the hospital and when we found that i had an extra 3.5l amniotic fluid witch is called polyhydramnios i had to have 4 weekly amnio reductions done the doctors manged to keep him there to full term when i had  my little man he had neonatal respiratory difficulties and hypotonia  witch is low muscle tone he required ventilation 72 hours kadison was seen by multiple clinicians in the Grace nursery at the children's hospital westmead kadison was extensively investigated  for Duchenne muscular dystrophy,Prader willi syndrome and myotonic dystrophy ans spinal muscular atrophy at that time all of theses had been excluded but a definite diagnosis has not been made kadison has a delayed gross motor development due to his hypotonia and weakness  he has swallowing and respiratory difficulties kadison;s low muscle tone means he is prone to sickness and has reduced ability to fight illnesses  kadison requires weekly  physiotherapy and hydrotherapy sessions kadison low muscle tone does not improve with age have a little person with low muscle tone is very time consuming but he is all worth every bit of it we wouldn't change him for the world  he is our little miracle