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Surviving Reflux: My facts (PART 3)

Kellzacar by Kellzacar Talking Back(May 7th) (rank 10th)

Hi guys - This is the final in this series. I hope that you have found this useful, as most can see some of the advice in this series applies to babies without reflux.

Sleeping – When sleeping a baby with Gastroesophageal Reflux will sleep better if they are on an angle. Here is what I did:

I put four bricks (two under each wheel) at the head of my daughter’s cot. I also brought lockable castors as my cot had castors and I didn’t want it rolling around. This elevated her cot nicely and still kept the mattress straight. To stop her from sliding down the cot I used a towel underneath her bottom and legs.

Car Travel – There are no easy answers here, most babies with Gastroesophageal Reflux absolutely hate car travel and sadly there is little you can do to help. All I have done is to reduce the amount of trips I do and the length. I have found 20 mins is the longest my daughter can handle. Another thing I did was to buy a 0-4 years car seat that also reclines, this way I have been able to experiment on positions etc. Whilst I have found that this helps it is not a cure.

Teething – Teething can be painful for any baby but with a baby with Gastroesophageal Reflux you have the added stress that teething will aggravate things and if you baby is on medication etc usually your doctor will increase your babies meds.  Here are some things I have done to help my daughter:

  • Make some homemade icy poles with pear juice. The coldness really numbs the gums and as my daughter sucked on it she was also getting a healthy drink.
  • Keep Pears in the fridge – dice up and place in a handkerchief, twist at the bottom and tie with a thick rubber band. My daughter also loves this!
  • Panadol is ok but I try not to use it as she already has a sensitive belly.

Finally something EVERY parent should know :

Most paediatricians will say that all babies have reflux so sadly a lot of babies go undiagnosed with Gastroesophageal Reflux. So if you think your baby has a problem. Be persistent, never give up! Record the crying, the strange sounds, keep a detailed diary of times etc for when you feed your baby and when you baby cries for hours. If possible use a video camera. Then become your GP’s worst nightmare. A mother SHOULD always follow their instinct because 99% of the time the MOTHER is RIGHT!

My daughter is now 24 months old and still wakes 2-3 times through the night with pain due to her reflux, she is on prescription formula called Neocate and she barely eats enough to keep her going . . I know that the Neocate is what keeps my daughter going . .

My daughter has good and bad days and as a family unit we have learned to really appreciate the good days and we always take advantage of the good days by a trip to the local park etc . .

The most important advice that I can offer to parents with a child suffering from severe reflux is to make time for each other, communicate and always allow time for each other to have a break. Remember you have other children and allow them time as well, often we get so wrapped up in the pain etc that we forget the basics .

Take time and enjoy your family . . .

Thanks for taking time to read this and I look forward to your feedback.

Cheers Kellz xoxo

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superpo
May 8th | superpo
Re: Surviving Reflux: My facts (PART 3)

Thanx for all the information. I'm curious though, you mentioned in part one that all caretakers should know CPR (yet another fact that could easily apply to non-reflux babies too! :)) but I was wondering why. My assumption is that baby can choke on the stuff that comes up? Or is there something else going on that makes these babies more at risk for stopping breathing?

Well-written and well-presented.



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      Kellzacar
May 8th | Kellzacar
Re: Surviving Reflux: My facts (PART 3)

Hi there,

Thanks so much for your feedback . . .  CPR is a very important thing to learn with any child BUT children with severe reflux can sometimes (and I STRESS sometimes) choke as the acids etc that come up can sometimes block the windpipe and as they are stressing and trying to breathe their hearts can stop .. . 

This has happened to my daughter Sumara twice now . . . Both times my husband had to preform CPR . It was very terrifying and I am glad everyday that we learnt how to do CPR . . I do STRESS that this reaction is very rare and NOT all reflux kids will suffer to this extreme . .

I hope this helps you to understand a little better . . .  Cheers Kellz



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Libby24
May 8th | Libby24
Re: Surviving Reflux: My facts (PART 3)

Sumara has such a wonderful mum and dad there Kelz.

I do hope that u do find some relief for all this and she gets better.

Luv Liz



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      Kellzacar
May 8th | Kellzacar
Re: Surviving Reflux: My facts (PART 3)

Hi Liz,

Thanks so much for your feedback . . . Sumara is a blessing and one we are glad to have in our lives . . . . We do know that in time she will get better and in the meantime we surround her with love . . .

Cheers Kellz



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cazza
May 8th | cazza
Re: Surviving Reflux: My facts (PART 3)

Great advice and sumara is so lucky to have such great parents and sisters to get her through all this...

cute photos of her as well ...

xx cazza



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      Kellzacar
May 8th | Kellzacar
Re: Surviving Reflux: My facts (PART 3)

Hi Cazza,

Thanks for you great feedback . . . We are all lucky to have Sumara in our lives. She fought so hard to survive against all the odd whilst in my belly and we all love her immensely . . .  Sumara mean 'gift from god' and she is our little angel . .

Glad you liked the pics . . .

Cheers Kellz



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