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Scar from thyroidectomy op
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Post natal illness (my experience with Graves Disease)

mcm by mcm Young Parent(August 2006) (rank 5th)

I didn't enjoy my first pregnancy. I felt unwell and suffered from severe nausea and morning sickness. I felt out of control. I think this had an effect on me in a physical sense as well as in other ways. After I gave birth I felt run down and frequently

felt tired and unwell generally causing  viruses. I knew it wasn't just dealing with a demanding newborn that made me feel tired, when my mother queried me - "you know she isn't really a newborn any more - she is 9 months." I went to a few doctors to see if they knew what it could be. I was given a pregnancy test (I wasn't), I was told I had viuses (which I usually did) but it wasn't til I went to my husband's family doctor that I was appropiately diagnosed. She had diagnosed my husband a few years previously with graves disease and she instantly recognised it in me.
I was tired, I had lost a significant amount of weight and I wasn't happy. I had the signs of an overactive thyroid. Finally I was able to see why I felt unable to do what every one else seemed to be doing - living life. It wasn't until I suffered a miscarriage that the doctors decided to put me on the immediate list to have a thyroidectomy. My thyroid was taken out which means I take a thyroid replacement in the form of a tablet.
Since my operation I have had my two boys. Now I feel better and can enjoy my children. It is very difficult having to deal with an unknown illness as well as a young child. It was a year before I was treated. I hope that others who feel something isn't quite right, get a check up. For yourself and your family.

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nabutters
November 24th | nabutters
Re: Post natal illness (my experience with Graves Disease)

i havent heard of this before, thank u for sharing this

naomi xx



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LoyalMiss
December 2006 | LoyalMiss
Graves Disease
Hi mcm, you don't know how pleased I was to read your advice.  I was diagnosed with Graves Disease just over three years ago when I got very sick.  I was put on medication immediately as I was very ill.  I was amazed at how much damage your thryoid can do and how many organs it controls.  I was only diagnosed because my doctor discovered that my liver was failing (luckily after a strict diet for 6 months, all is now well with my liver).  I just thought I was pregnant as I had all the symptoms the same as my last two pregancy.  I was not overly happy when they diagnosed me with graves disease instead.  I'm still trying to cope after three years (and on top of that I have a depression disorder that I have suffered all my life).  Graves disease and the hormones concerned have not helped this any.  I saw my specialist last week and had a special scan done.  Apparantly my options are to destroy my thyroid with radioactive iodine or remove it. and then go on hormone replacement therapy for the rest of my life.   The scan last week was to see if my thyroid was too badly damaged to destroy with radioactive iodine.  I don't see my specialist again until February so I have another few months to hope that a miracle happens (which by then it will have been 3.5 years but I can still hope).  I have been so scared and worried about who I will be if they remove or destroy my thyroid especially since I have so much trouble coping with my moods now (apparantely it is common for people suffering Bi Polar to also have severe thyroid problems).  I sure would appreciate finding out how you feel after having your thyroid removed and how the hormone replacement therapy affects you especially concerning your moods before and after the operation.  Wow I have never found someone else who suffers Grave Disease (it is rare with only 0.25% of 1% of the people in the world be diagnosed with Graves Disease).  Your thoughts would be much appreciated as I am terrified of what I am having to face.  Thank you


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      mcm
5.00 (Excellent) | December 2006 | mcm
Graves Disease
Hello! I was also given the choice of radiation therapy or the operation. I had a friend who took the first option. I preferred the latter option as I was keen to have a large family and the radiation isn't conducive with having children. If you want me to be honest, after the operation i felt terrible. But that is to be expected. Also having been pregnant and given birth 3 times its not all that bad! I couldn't eat well for a few days and I slumped a lot due to the wound.. My main concern now is with vitamin D defiency and low calcium levels. Apparently it is a delicate operation and other glands were affected.I am glad now that I have had the op. I felt awful the first year of my girl's life now I feel fine. I have my 2 boys and plan to have more so that is very important to me.


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           LoyalMiss
December 2006 | LoyalMiss
Graves Disease
Thanks mcm,  it gives me more food for thought.  I too am worried about the calcium deficiency because it is a known fact the Graves Disease leeches the calcium from your bones especially your spine.  I know this to be a fact as I have been a spinal patient for nearly 20 years now and when my thyroid is playing up, I know immediately because my pain level goes through the roof.  It is a worry to me though that there is still a calcium deficency after the operation as my specialist hasn't told me that.  He has made a big thing about the calcium issue as it stands now and has told me that if I don't remove or destroy my thyroid I will end up with ostopeorsis.  With what you have told me gives me more information to talk to the specialist about before I make my final decision.  Thanks for that, it is very much appreciated.


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                mcm
5.00 (Excellent) | December 2006 | mcm
Graves Disease
Please let us know how you go because I am interested. To be honest I am not sure how much so called specialists and professors really know. I felt like a guinea pig (even was accessed and questioned by Uni students). I consume a lot of dairy and after the op I lost my desire for a lot of dairy. Felt very strange. I felt though I should be forcing myself to eat it. Anyway please let me know how you go.


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                     LoyalMiss
December 2006 | LoyalMiss
Graves Disease
I certainly will.  However, my appointment with the specialist isn't until 15/2/07 so don't think I have forgotten you if I don't get back to you before then on this.  If I get any answers earlier I will certainly let you know.  I agree about specialists etc especially with Graves Disease as it is rare so really how much do they really know?


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hotmama31
4.41 (Good) | August 2006 | hotmama31
I know what u mean!

I do know what u mean by not feeling right kinda like depressed!  I didn't have any probls when I was pregnant with my son, it wasn't untill I had my first misscarriage (trying after 41/2 years) that my life was torn apart!  Now I'm trying again I''ve been on Tapozla 10 mg for a yr. So I hope things will turn out!!



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TheMentorMom
5.00 (Excellent) | August 2006 | TheMentorMom
Thyroid
I have heard of Graves Disease but was unaware of the symptoms.  Thanks for sharing your story!


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lindterbean
5.00 (Excellent) | August 2006 | lindterbean
thyroid
it's hard to diagnose throid disorders right off because the symptoms are so easily attributable to other things, depression, etc etc. If you think you might  have a thyroid disorder, definitely go to an endocrinologist, someone who is very familiar with all the little idiosyncrasies of this gland. I was misdiagnosed with hypo thyroidism when it turned out I was very very slightly hyper. It took me over a year (and a specialist) to get straightened out.


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      mcm
5.00 (Excellent) | August 2006 | mcm
thyroid
So right! It took me a full year b4 I was diagnosed and it wasn't until then I was referred to an endocrinologist that I was given a plan and the right medication - my condition was quite severe though. My dosage was so high the Prof had to get permission to prescribe such high levels and was then questioned by the Pharmacy when getting the prescription filled.


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sars
5.00 (Excellent) | August 2006 | sars
Thyroid

How wonderful does feel to actually wake up in the morning and say wow its all good! That was my first experience after taking my thyroid extract for a week. What amazes me is that it took so long for me to realise something was wrong and get checked out ( 12mths ) and only after it got so hard to do anything, I'd have to write a list of the stuff I had to do just so I'd remember. I worked for a guy that does hormone replacement therapy and when I finally thought this guy would know a thing or two I got blood tests done and we found the problem. The stupid thing on my behalf was that my obgyn dismissed the whole thing and told my to stop taking the extract while pregnant, so I did and now I'm starting to feel the same old feelings back again - so tired even after 8hrs solid sleep, starting to have to push myself to see friends and be social and cranky for little reason. Back to get another round of bloodtests to see if my thyroid is sluggish again. Its only been 10wks since the birth of the beautiful boy but I don't want to leave it 12mths to see if my instinct is right who wants to be joyless for that long if you don't have to!



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hrs2004
4.18 (Good) | August 2006 | hrs2004
Not heard of this
Had a quick look, and this: http://www.4woman.gov/faq/graves.htm seems like an informative site. Reading this made me wonder about my mother-in-law, who I think was diagnosed with thyroid problems a few years back. The other symptoms seem to fit, too. WIll have to ask further.


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      mcm
4.00 (Good) | August 2006 | mcm
Not heard of this
I had never heard of it either til my hubby had it. It is actually more common with woman in their 50's. The more I talk about it, the more I realise it can be quite common amongst post natal woman. Though it is usually an underactive thyroid which has differing symptoms.


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