Jedd is proof positive that you road will end one day. He was just like that as a baby. He could power puke across a room as well. If you look at my home page I have a link to Jedd's Caring Bridge site that will tell you how well Jedd is doing. It will give you hope, you should read it for sure.
He went from Severe GERD and 100% tube fed due to the pain from his Reflux to completely oral now. He still doesn't eat properly, but he is going MUCH better.
He also feel below the 5%tile and we have worked him up now to about the 50%tile. That's hard work.
Have you had her checked for Pyloric Stenosis?? If not, I would soon. They need to do an Upper GI series to tell if the pyloris is too tight. They can also add in an ultra sound of her belly too, to get a look at it.
If her pyloris is too tight, then it will delay the emptying even further.
Pyloric Stenosis is normally in first born males, but girls *can* get it as well. I know a girl who had it and had it repaired.
I will say that Bm is THE BEST for babies, it really is. Esp babies who have GI isssues. It is the easiest to pass through their systems. You would have to be BIG on elemination diet in order to do BM but it may be worth it. With all those issues, you just may not be able to. Don't feel bad. I know many Mothers who wanted to BF and ended up not being able to due to their child's medical issues. I'm one of them.
PLEASE please, join this website. It's free and we can give you ALOT of help. Don't be overwhelmed by the number of parents who ended up tube feeding their child. We can offer support and help to Parents of ALL kids who have had GERD and GI issues. These Parents have literally helped us to save our son's life when it came to medical information to make the best decisions for our son and his medical needs. They are Mothers who have BTDT.
www.parent-2-parent.com
My screen name there is *Jessica*. You will find me all over their boads giving out help to all the Mothers.
Are you in the US and what sea board are you on, the East or West Coast?? Based on that I can give you the locations and names of the BEST Peds GI hospitals. Even though you might think you're hospital you are going to now is doing a fine job, kids with complex medical issues (like vomitting blood) need to be seen by a Major Child's Hospital. They are more suited to these issues.
