My best friend has just had her 6 year old son diagnosed with mitochondrial disorder. She does not drive because she needs a knee replacement and is really struggling at the moment mentally. She is over welmed with the costs of medication and new beds etc. and has been offered no support groups or counselling. I seem to have no advice to offer her knowing little about this disease but if anyone can help me find a support group for her or if there is anyone that has got a child with this disease that could offer some advice it would be so appreciated as i am really worried about her. She says she cant cope with all much longer and i running out of ideas to help.
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