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ReannaBexleiyroseSummerKiarah
ReannaBexleiyroseSummerKiarah | March 2009

Need Help Urgently

I really need help with my 6yr old daughter, made heaps of posts in the past, but whats been happening in the last two weeks is a nightmare. I'll put in point form her disabiltys/diagnosis and specialist she sees then put what has been happening, so u get a clear picture.

*6yrs old

*been diagnosed ADD,ODD, SLEEP APNEIA, SEVERE SPEECH AND LEARNING DELAYS

*medicated on ritilin-10mg 3 times a day, by peadetrician

*see's speech therapist, peadritian, physcoligist,

*changed her diet, healthy diet,

Bexleiy of the past few days has been having epispodes of agreesive and


non-responsive behavior and becomes uncontrollable and blank and


foccussed on her disobedience.  She become super strengthed unable


to be held and very loud and agressive hitting and pinching struggling


against any form or attempt at calming her. When opposed or put into


her room begins banging on doors and damaging objects, messing her room


and possessions up and acting in defient ways. She also goes into repition


of loud noises and words ignoring anyone asking her to clam down or


be more quiet and becomes louder when requested to quiten down.



This can be triggered by something as simple as being told for the


third of fouth time - Bexleiy please go and have a bath! When told


more directly and sternly she triggers into an episode of the above


behavior and any attempt to tell her is responded with agressive


behavior, glazed eyes and blank stares. Her pupils dialate (become


enlargered) and her strength is more than a single adult can manage.



Environmental changes - school, close school friends acting around


her in hyperactive ways (very excited and wont listen to requests),


feral (out of control), her closest friend has been stealing and lying and


whinges at lot complaining (dobbing) other kids in for things they


have not done. Bexleiy is the centre stage for focus in her class everyone


wants to be her firend. She is social and plays with a central 5 - 6 person


group of boys and girls.



She is doing very well in her class academically. She has on a few occasions


been diciplined at school for reported pinching in the play group, being


disobedient to a teacher who at the end of recess requested they come


into class and 3 - 4 children hid from the teacher and it took 10 minutes


to get them into class.Putting glue on a students shirt, scribbling on other childrens work, and flushing hats down the


toilet.  This resulted in being sent to the office - the


other children said it was Bexleiy who said to run and hide from the


teacher (unconfirmed  - Bexleiy says different).  



We feel that something may have happened at school,or in the past with ex parnters. or a childs


house or she may have been bullied  but Bexleiy when asked what


is wrong, or has anything happened at school, starts looking away


from eye contact and either distracting behavior (diversion of topic),


or gets emotional and angry, or cries but still does not say what is


going on. Bexleiy has become very obsessed with her closest friend


(Ashley) and won't seperate from her at school or in class, and Ashely


is also the same back to her. She often rejects other friends because


of her desire to be with Ashley and ignore them or walk away. Ashley we


feel is not the best influence on Bexleiy as she behaviorally is very


hyperactive and at times naughty and disobedient. It is however very


difficult to seperate them from playing together and we feel not right


to say things such as "we don't want you playing with Ashley".



She also becomes very softly spoken in class and lacks vocal and ability


confidence and the teacher finds it difficult to hear what she is saying


at times. Always seeking attention from teacher for acadmic approval.


She gets huffy if the teacher gives academic attention to other kids and


dismisses her need for approval from the teacher. She often seeks the


teachers assistance on things she does not want to do on her own. When


the teacher is unable to give this assistance rather than attempt it she


will just go sit down and not do the activity  - this may be to aviod failure or


doing it wrong or be seen by others doing it wrong.



Bexleiy was very anxious starting school on the first few weeks, and at


times still display anxiety of separation when mum leaves after drop off.


 

* saturday night-camping,- 5pm-1am

*screaming whole campsite down, swearing , yelling crying very emotional

*wreaking things, trying to destroy tent, throwing large objects and hurting me and mike, hurting mike really badly by

throwing things like shoes,cups,keys,torch at his head which with the torch hit him really hard. pinching very hard cause really bad marks and a lot of pain

to sister, me and mike.

*Huge fear of toilets, refuses to use public toilets-hates bins in toilet, i remove them, she still freaks. wets herself always, every night wet bed..

wont use public toilet stands still and wets self.

* wont dress herself daily, wont feed her self, gets very emotional screaming, crying for me to feed her..a massive struggle to get her dressed, takes usually

40minutes to dress her as she is so strong and refuses.

*eyes turn black and go watery glazed when she goes destructive, then apolgises 1 hour after, not knowing what she did wrong

*stealing and hiding car keys, setting alarm off and we could find car keys cause she had hidden them this went on for an hour with car alarm

 ringing loudly disturbing campsite.

 

Sunday night:5pm-12am

 

*throwing plates, pots, shoes, large objects , smashing them, and being very voilent towards mike,nearly causing mike to call police because of the

strength and types of voilence she was doing to him

*swearing "your a dumb arse bitch head" Loser" always says these daily

*stealing keys which were way out of reach, she climbed on top of cupboards to grab them , unlocked car, jumped in, whilst we were trying to pull her out

she was punching screaming and yelling, kicking throwing things being very voilent, we could not control her her strength was to strong, me mike,

and a male neighbour couldnt even get her out of car, she blasted horn for 2hours, locked herself in car with keys we had no way of getting

 her out, she reversed car which nearly knocked down her 4yr old sister, thowing thing at the car windows whilst inside, alerted most of the neighbourhood

which looked on in complete shock, no one could help , they even tryed and she was so voilent. She was going crazy in the car jumping franticly

from each seat screaming, blasting horn. She finally unlocked car after a 2hour ordeal, and i managed with mike to get her out of car.

* She then bolted out onto the street and ran down to the end of the street screaming and swaying arms, jumping, crying and laughing. Onlookers were

shocked. finally grabbed her and held her hand and she walked back with me crying. When i thought all was good , she then bolted

 again the other direction pressing peoples door bells, banging on there doors at like 10pm at night. coaxed her back home, she then ran and jumped and

climbed on to the top of our car, which is a nissen xtrail (big car), and started jumping and screaming on the roof,bending the window screen wipers laughing

uncontrolably., neighbours were furious, telling us over the fence to control her, that they were trying to sleep,

we did not know what to do, we tryed everything...we got so close to calling the police.

 

after all this ordeal she casually walked in side sat down at television and watched tv (total different child) saying love you mummy and daddy. cuddling us

and saying sorry. She was asking why we were tired and angry and why neighbours came over, we explained what happeened and she saidd i did nothing

mummy and daddy, me being a good girl. She couldnt remeber a thing...We then had about an hour of trying to get her to go to sleep, which was a bit

difficult, but she finally crashed

 

Monday:

7-30, tryed getting her up for school, was to tired, finally got her up at 8.30am, with 10minutes to get her ready, she put on a performance trying to get dresses

which happens every morning. refused to eat breakfast, which happens everymorning. then took to school. ran off at school, wouldnt come back. got her

class and shes an angel..

sorry that its really long, but i really dont know what to do, do i call police on my own daughter (i feel horrible to even have to say that) she's only 6 but its really bad what she is doing, or do i take her to the hosp[ital..or does anyone have any other suggestion.

 



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Advice List: Extreme behavioural issues in young children.

Other answers to this question:


katierose
March 2009 | katierose
Re: Need Help Urgently

Hi  there,

I would be seeking immediate medical intervention. Your daughter needs medical help. If she suffers an episode like you have described before you can access intervention, then don't call the police, call an ambulance. They will then be able to observe her behaviour, they may sedate her and take her to the hospital, but at least then you have the opportunity to describe the ongoing symptoms your daughter is suffering. It is just as urgent as a cut that needs sutering or a broken arm, she needs assistance and she needs it urgently. Obviously those that have made the assessments are not managing her condition effectively. It is not your fault. It is a conditiion your daughter needs assistance for and as you are not a doctor or pschologist, you cannot do any more than love her, care for her and seek the assistance that she needs. I have seen many children whose behaviour has been way out of control through no fault of their own or their parents become delightful happy kids with the right medical intervention. I wish you all  the best and please let me know how you fare. If you need to chat, get in touch. There is help out there, sometimes you just have to be assertive to get the assistance your daughter needs.

 



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xinap
March 2009 | xinap
Re: Need Help Urgently

A long shot, but anything is worth trying, right? Do a Google search on 'sue dengate fed up' and have a look at the info on-line. If you can get hold of the book ('Fed Up') it could be worthwhile.

Wishing you the very best



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booblady-1
March 2009 | booblady-1
Re: Need Help Urgently

my best friend had the same problem with her daughter she ended up taking her off ritalin this was what happened to her daughter on that medication. I will try to catch up with her and see what she done to calm her daughter down as far as i know she is doing well without allthe intervention crap, tests and medication that made her suicidal she was only 5 l she is now 8 . I promise i willtry to get some answers to help you if you have not get any advice by tomorrow night.  How long has your 6 year old been on ritalin for.



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KristyWatson
March 2009 | KristyWatson
Re: Need Help Urgently

zoning out glazed eyes and no memory of what has happened? If I were you I would get her tested for epileptic fits as what you describe is sometimes a symptom of epilepsy, not absolutly sure may not be her problem but at least it is ruled out



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Arna
March 2009 | Arna
Re: Need Help Urgently

Ok, i have a question for you.  Is she an only child (or the oldest with a largish age gap) and has been used to being the centre of attention at home?  If so, then unfortunately, the problem isn't so easy to fix. 

appart from the overly aggressvie behaviours, she does sound like a typical 6 year old.  I know, I have 1 myself, and she can pretty muh be the same, though the 5 year old is worse! lol.

Deep breathes hun, i can't be of much help, but there are several members who will be of great help to you.  Keep at the doctors too, there has to be someone who is able to help you with your daughter.

Hang on, have tried videoing her behaviours and showing it back to her?  We just started doing this with hours and they hate it to the point they will behave like angels for the next few days.



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mystikal
March 2009 | mystikal
Re: Need Help Urgently

Keep visiting children's psychiatrists until you see results. There are many cases of children being misdiagnosed, given the wrong medication and so much more. I was misdiagnosed with a disorder for 7 years and despite telling doctors their medications weren't working noone would listen to me because they assumed I was nuts and just trying to talk them out of giving me my meds. They even increased the dosages several times when I said it wasn't working. They sent me off tracks (similiar to your daughter) and I had no control over it until I met the most wonderful psychiatrist who saved my life, took me off everything, rediagnosed me and now I live close to a normal life. Did your daughter do this before she was given ritalin? I had a doctor with over 20+ years experience give me an anti depressant for what he thought was rapid cycling bipolar disorder which the psychiatrist who gave my life back to me said it would have killed me if I had rapid cycling bipolar disorder because it would have excaecerbated hypomania and would have topped myself off (killed myself).

So as you can see it's very very important not to listen to just one person's opinion. Keep changing children psychiatrists until you see results. I promise you things will get better when you find the person who can help. If things are getting worse for your daughter then those are warning bells that the people you're seeing aren't making your daughter better!



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      mystikal
March 2009 | mystikal
Re: Need Help Urgently

p.s one part stood out to me, almost like deja vu. When I was under the effects of the medication I wasn't supposed to be on, people would talk to me normally but I percieved it as they were screaming at me and I had rage black outs just as you described with your daughter. I would scream, swear, throw things, punch doors and walls and then an hour later I couldn't remember anything. I have this funny feeling in my stomach that your daughter isn't on the right medication, this sounds far too familiar.



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tdg1973
March 2009 | tdg1973
Re: Need Help Urgently

HI

You do not mention what sort of ongoing therapy the family is recieving.  Ring the Psychologist, but I think she needs to see a child psychiatrist.  If she has been assessed, there should be some sort of support with therapy.  If not do as DA suggested and research it all, and ring CAMHS(google this)  and get them to come out ASAP or when she is next in a disassociative state take her straight to the Emergency Dept of your local hospital and they will help you.  If I were you, I would contact camhs asap.  Also find out about respite care.



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janicepovey
March 2009 | janicepovey
Re: Need Help Urgently

 Was reading about a case recently where a lady after many years was diagnosed with "DISSOCIATIVE IDENTITY DISORDER" otherwise known as multiple personality disorder. It was a mental process where a lack of connection in thoughts, memories, feelings or actions causes a disturbance in identity. It allows two or more seperate personalities, known as alters, to control behaviour.

It's like a daydream, you can exhibit different mannerisms, personalities, gender orientation or physical changes and not even recall what happens when another personaltity is in control.

Just a thought have her doctors explored this disorder and maybe Retilin isn't the way to go, could be making the situation worse.

I wish you all well in finding out what is wrong and treatment can bring your daughter back to you.



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Rukia
March 2009 | Rukia
Re: Need Help Urgently

As DA said look up all info you can about the "lables" she has been given.

the one thing that has me scared for you is her super strength and that her eyes Glaze over. my eyes do that I get stronger when for lack of words phsyco. (sorry my brain doesnt work atm) but i have borderline personality disorder and bipolar. the bpd means that i am kinda have split personality and 1 is good and 1 is very bad. i can switch in a matter of seconds.

I would be seeking about another opioion on all her lables. and having a child who is on ritilin I seriously dont think it is working. my son is so dosilie when medicated for his ADD.



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anniebabe
March 2009 | anniebabe
Re: Need Help Urgently

has her condition worsened since being on ritilin/ if it has there lies your problem

not everyone reacts to drugs in the same way. sometimes they have sideeffects.on some individuals not only dont they work but can aggrevate the condition they are being treated for.

i would get a second opinion from another medical expert. no two doctors are the same.

if her behaviour  has improved since ritilin then you need to look elsewhere. dont always assume because a doctor has subscribed something that its correct a lot of times its trial and error untl they find one that works

 



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DarkenedAngel
March 2009 | DarkenedAngel
Re: Need Help Urgently

...been diagnosed ADD,ODD, SLEEP APNEIA, SEVERE SPEECH AND LEARNING DELAYS...

There's your problem. Learn all you can about these conditions and how to deal with them and things will get a little bit easier. Get involved in support groups for parents with kids with these conditions, get counselling for yourself in how to cope with all this, and if you can get her into behavioural therapy do so.

Calling the police won't do any good - unless she runs away again and gets lost of course! Most hospitals won't do much either, although they may be able to refer you to help and assistance that will help you.



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